Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

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PRED AGAIN

not posted for a while i came off pred at the doctors advise 1 mg a month eh ho back on 7mg a day to function again was like starting over .again doctor wanted...

not posted for a while i came off pred at the doctors advise 1 mg a month eh ho ...

deeperpurple

•13 minutes ago

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Pred again

Hi I have been diagnosed with PMR again and put back on prednisone I really did not want to go back on the steroids I had a awful time 2 years ago when I was...

Hi I have been diagnosed with PMR again and put back on prednisone I really did...

24paula

•1 hour ago

2 Replies

Adrenal problems - can they include sickness and diarrhoea?

I'm sure there are some FAQs on this, but apologies, I can't find them. I am on 3mg, having reduced slowly, and not about to reduce further. For the last few...

I'm sure there are some FAQs on this, but apologies, I can't find them. I am on...

Sharitone

•2 hours ago

5 Replies

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Hello

Hello everyone I am newly diagnosed with PMR and trying to get used to the idea that I have it Would welcome any tips on managing Prednisone side effects 😁

Hello everyone I am newly diagnosed with PMR and trying to get used to the idea ...

Sussexsindydoll

•3 hours ago

12 Replies

random cortisol result?

hello all, I had a random cortisol test at 8am a couple of days ago, I’m down to 4.5mg at the moment. The result has come back as 292nmol/L. There isn’t any...

hello all, I had a random cortisol test at 8am a couple of days ago, I’m down to...

Cfmad298601

•4 hours ago

1 Reply

Tapering too quickly

I realise I’ve been tapering too quickly. I followed all the excellent advice tapering at higher levels and had very little trouble. Why then, you may ask, did...

I realise I’ve been tapering too quickly. I followed all the excellent advice ta...

Lclmlbls

•4 hours ago

1 Reply

timings of dosing when switching to enteric coated pred

I have been coping with stomach problems because the pred has been badly irritating my stomach so my doctor has prescribed coated pred. At the moment, I take...

I have been coping with stomach problems because the pred has been badly irritat...

Hidcote

•4 hours ago

4 Replies

Much Better

Despite no inflammatory markers my GP believed I did indeed have PMR. I have never felt so well after 3 weeks on 15 mgs of prednisone. I'm beginning my...

Despite no inflammatory markers my GP believed I did indeed have PMR. I have ne...

FreeWolf

•18 hours ago

4 Replies

Heart issues and pred

Brief summary - diagnosed with PMR around September 2020. Been on pred since then, mostly somewhere between 5 and 10mg, apart for a brief period off pred in...

Brief summary - diagnosed with PMR around September 2020. Been on pred since the...

SudsSuds

•19 hours ago

2 Replies

Report on “Aching arm and cold hand”

I saw the doctor today and after lots of questions she ruled out a heart problem because I’m always better after walking. It could be a trapped nerve at the...

I saw the doctor today and after lots of questions she ruled out a heart problem...

KerryIreland

•21 hours ago

2 Replies

Timings of medications, help please.

Can anyone help me with the timings for the following medications which I need to take each day apart from the Risedronate once a week, please? I have spoken...

Can anyone help me with the timings for the following medications which I need t...

Katkin1

•21 hours ago

11 Replies

Has anyone suffered with eye problems after two years of treatment for GCA.?

Well unfortunately I seem to be back to square one. After successfully reducing to 4mgs of pred I reduced to 3 as per my rheumatologist plan and have had eye...

Well unfortunately I seem to be back to square one. After successfully reducing...

Golfers1

•23 hours ago

15 Replies

Rheumatologist advices no reduction of prednisolone while adrenal glands not working and has issued emergency hydrocortisone kit

I've had PMR since October 2020 and managed to get down to 2.5mg of prednisolone in February 2023. But after a flare, I had to raise it to 5mg and have been...

I've had PMR since October 2020 and managed to get down to 2.5mg of prednisolone...

harpsichor

•23 hours ago

14 Replies

How cortisone/pred works - a new study reports on a potential target to replace steroids

I thought you'd be interested in this article about a study from Germany which has worked out how pred works - and knowing that is the basis for developing...

I thought you'd be interested in this article about a study from Germany which h...

PMRpro

Ambassador•1 day ago

39 Replies

Covid vaccination

Hi all - I have just been notified I can have the booster vaccination. Is there any issue with this and GCA or steroids?

Hi all - I have just been notified I can have the booster vaccination. Is there ...

Gladys911

•1 day ago

2 Replies

Lots of Xrays and possible risks

Hi , I had an ablation procedure on my heart in 2005 as I understand it to cauterize 2 additional pathways which treated the SVT I was getting. It was quite...

Hi , I had an ablation procedure on my heart in 2005 as I understand it to caute...

Animalover65

•1 day ago

10 Replies

Cortisol issues

I'm fortunate in having a good GP who is very concerned about my total exhaustion and inability to cope with everyday life. She wrote to my rheumy who...

I'm fortunate in having a good GP who is very concerned about my total exhaustio...

Sammo47

•1 day ago

24 Replies

Spring COVID Booster

Well, here we are again. I have just received an email from NHS regarding the spring booster for Covid which says that according to my medical records I may be...

Well, here we are again. I have just received an email from NHS regarding the sp...

Bayleaf1

•1 day ago

4 Replies

New diagnosis of RA

I was diagnosed with RA approx 4 wks ago & started taking Methotrexate 15mg for past 2 wks followed by a blood test 4 days ago, my question is, am I supposed...

I was diagnosed with RA approx 4 wks ago & started taking Methotrexate 15mg for ...

StanandDot

•2 days ago

3 Replies

Noraltavet

I have been using UMARY as a pain suppresent in conjunction with Methotrexate to get off prednisone for my PMR. Has anyone else been using UMARY?

I have been using UMARY as a pain suppresent in conjunction with Methotrexate t...

Veteranvet

•2 days ago

3 Replies

testing for IL6

Is it possible to test for the IL 6 factor before starting Actemra to see if Actemra will work for you?

Is it possible to test for the IL 6 factor before starting Actemra to see if Act...

Mstiles

•2 days ago

1 Reply

Why are my limbs painful after coming off Pred?

I have been on pred since 2018, and finally managed to come off it about 5 weeks ago, after reading all the advice and comments in this forum - I'd never have...

I have been on pred since 2018, and finally managed to come off it about 5 week...

Margot27

•2 days ago

32 Replies

Spring COVID vaccination

Hi all, I was told when I was diagnosed with PMR last year that the condition would mean I was immuno-suppressed. Consequently I thought I would be entitled...

Hi all, I was told when I was diagnosed with PMR last year that the condition w...

Hedgehogfriend

•2 days ago

21 Replies

PMR Flare

Dx Feb 2018 20mg Been OK on 3mg since January, testing out 2.5mg occasionally. it's my Nemesis but I'll get there eventually. However on 17th March I started...

Dx Feb 2018 20mg Been OK on 3mg since January, testing out 2.5mg occasionally. i...

GrannyDi

•2 days ago

4 Replies

GCA question

I am happy to report I am feeling pretty good and down to 5 1/2 mg if prednisone. My question is, does anyone else with GCA get a pain like feeling in their...

I am happy to report I am feeling pretty good and down to 5 1/2 mg if prednisone...

Plains

•2 days ago

13 Replies

Can/should I top up for 5 days?

I am tapering slowly and steady on 4.5mg pred for PMR. I feel reasonable but would like to feel better for the next five days for a family occasion ....

I am tapering slowly and steady on 4.5mg pred for PMR. I feel reasonable but wou...

kangaroojohn

•2 days ago

6 Replies

how to use this website

I am new to the group and wanted to bookmark items to revisit them later but am unsure how to go about this. Advise would be appreciated

I am new to the group and wanted to bookmark items to revisit them later but am ...

Golfers1

•2 days ago

2 Replies

Taper

Hi everyone …I'm feeling ok but my weight gain is just crazy I’ve managed to go down 1/2mg of prednisone at a time to now 7-1/2 mg have been on that 6...

Hi everyone …I'm feeling ok but my weight gain is just crazy I’ve managed to g...

Januzzi

•2 days ago

2 Replies

thanks for your advice

If you responded to my questions re sciatica and PMR thank you very much. I am sifting through advice and trying to sort what might get me through this pain....

If you responded to my questions re sciatica and PMR thank you very much. I am s...

Trovatello

•2 days ago

2 Replies

Tapered to 2 mg

I have now been on 2 mg for a week and was expecting the usual fatigue when I start at a new lower level but instead this time I feel better than I have in...

I have now been on 2 mg for a week and was expecting the usual fatigue when I st...

Paulagcl

•2 days ago

12 Replies

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

PRED AGAIN

Pred again

Adrenal problems - can they include sickness and diarrhoea?

Hello

random cortisol result?

Tapering too quickly

timings of dosing when switching to enteric coated pred

Much Better

Heart issues and pred

Report on “Aching arm and cold hand”

Timings of medications, help please.

Has anyone suffered with eye problems after two years of treatment for GCA.?

Rheumatologist advices no reduction of prednisolone while adrenal glands not working and has issued emergency hydrocortisone kit

How cortisone/pred works - a new study reports on a potential target to replace steroids

Covid vaccination

Lots of Xrays and possible risks

Cortisol issues

Spring COVID Booster

New diagnosis of RA

Noraltavet

testing for IL6

Why are my limbs painful after coming off Pred?

Spring COVID vaccination

PMR Flare

GCA question

Can/should I top up for 5 days?

how to use this website

Taper

thanks for your advice

Tapered to 2 mg

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