Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

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Adrenal fatigue?

I have been suffering the most dreadful fatigue and breathlessness recently with gentle exercise such as walking. I can go to work OK, I'm a plumber and...

I have been suffering the most dreadful fatigue and breathlessness recently with...

Trainy

•7 hours ago

10 Replies

lower dose prednisone

Update Took a call from respiratory nurse an hour ago. My respiratory consultant and rheumatologist have had a discussion and decided to keep me on 10 mg of...

Update Took a call from respiratory nurse an hour ago. My respiratory consultan...

Numptybrain

•12 hours ago

2 Replies

Stiffness/sore muscles

I have been off prednisolone for 60 weeks now, and on TCX for 4 years, but on 4 weekly jabs for 40 weeks. That fourth week before the jab I usually experience...

I have been off prednisolone for 60 weeks now, and on TCX for 4 years, but on 4 ...

LemonZest11

•14 hours ago

15 Replies

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chest infection

I am currently tapering from 30mg to 25mg prednisolone for GCA. (been taking pred since February). I have had a productive cough and what I believe is a...

I am currently tapering from 30mg to 25mg prednisolone for GCA. (been taking p...

kalgoorlie

•15 hours ago

7 Replies

Covid vaccination in England for 75 & over & those on 20mg steroids at this moment, & 20mg for over one month

I arrived at my appointment for Covid vax this morning, and told the truth, the whole truth & nothing but the truth. I suffer fromPolymyalgia Rheumatica,...

I arrived at my appointment for Covid vax this morning, and told the truth, the...

Pixix

•15 hours ago

18 Replies

Help for a friend

Friend of mine been diagnosed with pmr. First contact with her doctor looked hopeful, although only prescribed 15 mg. She was then told to start reducing...

Friend of mine been diagnosed with pmr. First contact with her doctor looked hop...

Dorsetgirl17

•17 hours ago

4 Replies

Back/pelvis/hip pain?

A month or 2 ago, I got a new dog, he's bigger than my previous dog and he pulls on the lead. And I got stressed adapting to the change. Somewhere soon after...

A month or 2 ago, I got a new dog, he's bigger than my previous dog and he pulls...

Curious101

•17 hours ago

7 Replies

Nominated!

Done.

Tescohednesford

•17 hours ago

Be the first to reply

on methotrexate

hi anyone know answer to this please? if a wheezing problem with lungs - which part on a full blood count would this show up if methotrexate was cause?

hi anyone know answer to this please? if a wheezing problem with lungs - whi...

booshywooshy

•18 hours ago

2 Replies

Incredible Pred Tale

OH's cousin is over from Virginia aged 77. He told me he had pmr January 2022 and was started on 60mg of pred. Gosh! Unbelievably high dose. Reduced fast...

OH's cousin is over from Virginia aged 77. He told me he had pmr January 2022 ...

diana1998

•19 hours ago

10 Replies

GCA Questions

Hi Kind Friends, My GCA hit last October, about 6 months ago, and I was put on 60 mg. Prednisone. (I’ve also been on Actemra since November.) I’m doing pretty...

Hi Kind Friends, My GCA hit last October, about 6 months ago, and I was put on ...

Lenore58

•19 hours ago

9 Replies

Advice please re sickness bug and taking meds

Hi, I was violently sick yesterday evening and have only managed small sips of water since then. Have stomach pain too and not even thinking about eating...

Hi, I was violently sick yesterday evening and have only managed small sips of w...

Dance62

•19 hours ago

6 Replies

advise please re split dose

Can I have some Advise please . I’ve been on 4mg for the last month with another month to go before reducing again (hopefully) and after reading the advice...

Can I have some Advise please . I’ve been on 4mg for the last month with anothe...

MalloryMoss

•1 day ago

10 Replies

PMRGCA UK charity nomination

Just saw this on Facebook in case anyone would like to nominate a favourite (!) charity for a £5000 draw...just search PMRGCA and a good one comes up!...

Just saw this on Facebook in case anyone would like to nominate a favourite (!) ...

Orange_2022

•1 day ago

6 Replies

Arms in sleeves.

We talked about this problem at my knitting club last weekand all had the same problem with arms getting stuck in the sleeves of coats etc. It all came to a...

We talked about this problem at my knitting club last weekand all had the same p...

Booklist

•1 day ago

16 Replies

ASPIN WOUNDER DRUG

I have taken aspirin dayly since I was about 40 I am now 86 in October if I forget to take it I quickly knew. Without it I felt quite lethargic But my...

I have taken aspirin dayly since I was about 40 I am now 86 in October if I forg...

Ronzy

•1 day ago

9 Replies

Prednisolone and diabetes / high bp worried sick about all the side effects

hi everyone I was diagnosed with PMR in February this year And despite being a diabetic with high bp was put on Prednisolone and alendronic acid - I was...

hi everyone I was diagnosed with PMR in February this year And despite being a d...

Pol53

•1 day ago

36 Replies

Please vote for us to win £5,000!

Hi everyone, there is a limited-time draw running for us to be in with a chance of winning £5,000. Please help us and vote for us by clicking on the link...

Hi everyone, there is a limited-time draw running for us to be in with a chance ...

Fran_Benson

Partner•1 day ago

28 Replies

Gearoid

Have been told since January i might have GCA. Have been on Pred from 40ml now down to 10ml. I have had numerous tests all coming back negative. To date i...

Have been told since January i might have GCA. Have been on Pred from 40ml now ...

Rivocco

•1 day ago

12 Replies

Slapped Cheek Disease

My nine year old Grandaughter has Slapped Cheek Disease. I am on my final 3mg of Pred a day for PMR. Is it ok to be in contact with her. Thank you. Jenny

My nine year old Grandaughter has Slapped Cheek Disease. I am on my final 3mg of...

Attic

•1 day ago

7 Replies

Update

So started off with bloods showing CRP39 and ESR 68.Went onto 15mg of prednisalone and got immediate effect with tablets. I must say, i was not affected as...

So started off with bloods showing CRP39 and ESR 68.Went onto 15mg of prednisalo...

pastamaid

•1 day ago

9 Replies

prednisone

It’s been years since I’ve been on prednisone and then I was on dosages of 40/30mg per day for brittle asthma but now it’s for pleural/pericardial effusion and...

It’s been years since I’ve been on prednisone and then I was on dosages of 40/30...

Numptybrain

•2 days ago

Be the first to reply

Dexa Scan and my Pain - Hello :)

Hello everyone :) I've just had a Dexa scan and the lady operating the machinery said at first glance it all looks good which was lovely to hear.. last time I...

Hello everyone :) I've just had a Dexa scan and the lady operating the machiner...

discoballs

•2 days ago

16 Replies

Sugar substitute

Trying to follow anti inflammatory diet. Can I substitute sweetener for sugar occasionally

Trying to follow anti inflammatory diet. Can I substitute sweetener for sugar oc...

Shires123

•2 days ago

11 Replies

PMR update, flare, cholesterol, pre diabetes, neck, DEXA etc

Follow up to previous post a few weeks back. Many thanks for helpful comments and support on previous post. Just to recap, when I posted last, I was...

Follow up to previous post a few weeks back. Many thanks for helpful comments a...

Gimme

•2 days ago

8 Replies

Blagging a scarce Covid booster

Recent posts have asked questions about Covid booster eligibility for those taking prednisolone and being immuno-suppressed, potentially.I flippantly replied...

Recent posts have asked questions about Covid booster eligibility for those taki...

OldPenny

•2 days ago

11 Replies

Short dose increase?

On 25mg mild symptums. Weekend activity coming up. Thinking of 5mg uplift for couple of days to get through. Any prroblem?

On 25mg mild symptums. Weekend activity coming up. Thinking of 5mg uplift for ...

tonyevans48

•2 days ago

8 Replies

Egg allergy

Hi. I had pmr for 2 and half years but have been clear for 11 months now thanks to all on the forum and Dorset Lady for my slow taper programme. I think i...

Hi. I had pmr for 2 and half years but have been clear for 11 months now thanks...

Cosmos22Marigold

•2 days ago

2 Replies

Disappointed and worried

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went through my history of pain, I was initially diagnosed with PMR in sept last year...

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went thr...

Cooper02

•2 days ago

63 Replies

The Flare That Keeps on Giving

I was diagnosed with PMR in August, 2022. I also have multiple sclerosis, autoimmune thyroid disease (Grave’s) and Sjogren’s Disease. With a few ups and downs...

I was diagnosed with PMR in August, 2022. I also have multiple sclerosis, autoim...

Donna5658

•2 days ago

8 Replies

Write a post or ask a question

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

Adrenal fatigue?

lower dose prednisone

Stiffness/sore muscles

chest infection

Covid vaccination in England for 75 & over & those on 20mg steroids at this moment, & 20mg for over one month

Help for a friend

Back/pelvis/hip pain?

Nominated!

on methotrexate

Incredible Pred Tale

GCA Questions

Advice please re sickness bug and taking meds

advise please re split dose

PMRGCA UK charity nomination

Arms in sleeves.

ASPIN WOUNDER DRUG

Prednisolone and diabetes / high bp worried sick about all the side effects

Please vote for us to win £5,000!

Gearoid

Slapped Cheek Disease

Update

prednisone

Dexa Scan and my Pain - Hello :)

Sugar substitute

PMR update, flare, cholesterol, pre diabetes, neck, DEXA etc

Blagging a scarce Covid booster

Short dose increase?

Egg allergy

Disappointed and worried

The Flare That Keeps on Giving

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