Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,072 members • 39,819 posts

All posts for September 2023

GCA temple pain getting worse again

Hi All, first time posting so here goes -Diagnosed with GCA in November 2022, put on 60mg prednisolone, symptoms stabilised quite quickly, but felt unwell...

Hi All, first time posting so here goes -Diagnosed with GCA in November 2022, pu...

maisydaisy58

•1 year ago

14 Replies

Not fair!

I woke up this morning with crushing fatigue and mind-boggling pain. It took me a little bit before I realized that my PMR is back. I put a call into my...

I woke up this morning with crushing fatigue and mind-boggling pain. It took me ...

Amkoffee

•1 year ago

19 Replies

Tooth abcess

How typical! I'm about to go away for a long planned for wedding celebration (not mine, I hasten to add)! Because I haven't done a great deal this year, as...

How typical! I'm about to go away for a long planned for wedding celebration (no...

tempusfugi

•1 year ago

9 Replies

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liver and blackPudding

I had liver today and black pudding , and for some reason I started getting cramps then I had to rush to the toilet, i had diarrhoea and it seemed like it was...

I had liver today and black pudding , and for some reason I started getting cram...

Prettywoman73

•1 year ago

6 Replies

test my email

hello folks I have been having an issue with my email as a new provider has bought the company. I normally get an email from you every morning but haven’t seen...

hello folks I have been having an issue with my email as a new provider has boug...

Skier321

•1 year ago

8 Replies

covid

Hi all Have just tested positive for covid. I’ve managed to reduce steroids to 2mg per day. Should I now increase the dose. I’m waiting to hear from a...

Hi all Have just tested positive for covid. I’ve managed to reduce steroids to ...

Ana-16

•1 year ago

32 Replies

Reading my symptoms

I have been stuck on 5 mgs of Pred for a very long time. I attempted to reduce by half a mg. I immediately felt really ill, deathly sick and dizzy with...

I have been stuck on 5 mgs of Pred for a very long time. I attempted to reduce b...

SheffieldJane

•1 year ago

82 Replies

Energy back finally

it’s been a long haul. I am happy to say that after much dreaded fatigue, off and on when tapering ,I am finally feeling well with energy to live a normal...

it’s been a long haul. I am happy to say that after much dreaded fatigue, off an...

Chopin002

•1 year ago

11 Replies

Doctor won't diagnose PMR

I'm absolutely certain that I have PMR. But my blood tests all came back normal, including the erythrocyte sedimentation rate and the inflammatory marker...

I'm absolutely certain that I have PMR. But my blood tests all came back normal...

Creas

•1 year ago

41 Replies

update PMR or Neck Problem

Just putting this here as I don’t know if anyone can see it on my thread, sorry if repeating myself. UPDATE Just spoke to GP. Not a successful call. When I...

Just putting this here as I don’t know if anyone can see it on my thread, sorry ...

Purplelamp

•1 year ago

22 Replies

good morning

I am currently being treated for latent TB with Rifampin and on prednisone 6mg. I was doing so so well before this new med and it seems rifampin decreases the...

I am currently being treated for latent TB with Rifampin and on prednisone 6mg. ...

Curry_girl

•1 year ago

6 Replies

PMR, travelling abroad, emergency pack of Pred ( “ sick day rules”) in case of illness

Hello, I’m off to a small Greek island next week where there are limited medical facilities - there are doctors but no pharmacy. I’ve just had a bit of a...

Hello, I’m off to a small Greek island next week where there are limited medical...

ChrissieHW

•1 year ago

5 Replies

What to do if going up 5mg in a flare didnt work?

I have been on pred since 2015. At my lowest at 3.5 mg. No medical input since COVID as my GP just lets me get on with it. I've been on 5mg for about a year...

I have been on pred since 2015. At my lowest at 3.5 mg. No medical input since ...

PMRLondon

•1 year ago

4 Replies

Orpington Support Group - Wednesday 6 September at 2pm

If you live near enough to join us this Wednesday 6th September we have a talk by Anne Duneclift, Bowen Therapist at Creating Health & Harmony. Please email...

If you live near enough to join us this Wednesday 6th September we have a talk b...

pennyw

Administrator•1 year ago

1 Reply

Do I have PMR? This is getting ridiculous.

Hi everyone, None of my doctors can give me a definitive diagnosis. I have two rheumatologists and a GP. One of my rheumys is at the Mayo clinic. My...

Hi everyone, None of my doctors can give me a definitive diagnosis. I have two ...

sferios

•1 year ago

29 Replies

I am so annoyed with myself: yo-yoing,i would value your thoughts

I am so annoyed with myself! I’ve been on prednisolone for nearly 5 years years now since I was being diagnosed with GCA and PMR. I have had two relapses,...

I am so annoyed with myself! I’ve been on prednisolone for nearly 5 years year...

allofaquandry

•1 year ago

22 Replies

Possible new blood test marker for PMR?

I have just checked out my results from a recent blood test, the first time I've done this via my GP website instead of by phone call. All normal with CRP etc,...

I have just checked out my results from a recent blood test, the first time I've...

Greenthought

•1 year ago

2 Replies

PMR returns - maybe?

It is just over 2 years since I took my last pred, having been on them for 2 1/2 years. Over the last year I have suffered with chronic low back pain, and...

It is just over 2 years since I took my last pred, having been on them for 2 1/2...

palewolf

•1 year ago

4 Replies

PMR and Covid vaccine

Hello. I was diagnosed with PMR in March 2023 but had pain from October 2022 which GP put down to deferred pain from hip problem which I had seen a physio who...

Hello. I was diagnosed with PMR in March 2023 but had pain from October 2022 whi...

Richard170356

•1 year ago

8 Replies

Does anyone take Dr. Megan's Nutranize for CGA? It has all the vitamins and supplements that are recommended. Take 2 in am and 2 in pm?

Hi Have been reading about all trhe vitamins and supplements I should be taking. Does anyone take Dr. Megans Nhtranize for GCA. It has all the vitamins and...

Hi Have been reading about all trhe vitamins and supplements I should be takin...

Groda

•1 year ago

3 Replies

GCA return?

I was dx with GCA and PMR Jan. 2018 and have gotten down to 3.5mg of pred. Today I'm having those ice pick to the brain feelings again like I had when first...

I was dx with GCA and PMR Jan. 2018 and have gotten down to 3.5mg of pred. Toda...

gtate1914

•1 year ago

5 Replies

PMR Update

Visited yet another Rheumatologist this past week. The last Rheumatologist wanted me off the prednisone without taper to see how bad I can get so he can order...

Visited yet another Rheumatologist this past week. The last Rheumatologist wante...

SMH4CRNA

•1 year ago

12 Replies

prednisolone

Hi My Gp said I will need to go back on steroids . I’ve been off them for a few weeks now & the agony is unbearable . My Gp put me on naproxen until blood...

Hi My Gp said I will need to go back on steroids . I’ve been off them for a fe...

TedTheMaineCoon

•1 year ago

19 Replies

Another Inflammatory Marker?

Hi all, My wife is being seen by a hematologist who made an interesting comment. She told us that my wife's blood shows clear evidence of substantial...

Hi all, My wife is being seen by a hematologist who made an interesting comment...

montebello

•1 year ago

1 Reply

Interview with Sarah L. Mackie, MD on Tocilizumab, steroids and the future of GCA treatment.

https://www.healio.com/news/rheumatology/20230831/bubbling-with-new-ideas-tocilizumab-steroids-and-the-future-of-gca-treatment

https://www.healio.com/news/rheumatology/20230831/bubbling-with-new-ideas-tocili...

perceptual63

•1 year ago

7 Replies

Tiredness tapering to 9

I am almost at the end of my 2nd week of tapering to 9mg pred, following Dorset Lady’s 5 week plan. During the last few days I have been very tired and fallen...

I am almost at the end of my 2nd week of tapering to 9mg pred, following Dorset ...

Lclmlbls

•1 year ago

18 Replies

Covid jab and pausing methotrexate

Hello, please can anyone help with a covid jab/methotrexate question... I have problems with my memory but I am fairly sure there were posts about a published...

Hello, please can anyone help with a covid jab/methotrexate question... I have p...

Ann1A

•1 year ago

10 Replies

Tapering and adrenal side effects?

Has anyone struggled with diarrhea most days when tapering. Sort of started about 3 or 4 weeks ago. I’m currently at 6 mg with a split dose at 5 mg in the...

Has anyone struggled with diarrhea most days when tapering. Sort of started abou...

Spartans1

•1 year ago

10 Replies

Flare after vaccine

Good morning dear people. Ten days ago I received the new RSV vaccine. My husband is undergoing treatment for stage three cancer so we were advised to get the...

Good morning dear people. Ten days ago I received the new RSV vaccine. My husban...

Blackcatlover

•1 year ago

66 Replies

flare?

Hello all, I’m just entering my second year of PMR and I’m now down to 7.5 mgs of Prednisolone but the last week I have felt awful. Very tired, my body aches,...

Hello all, I’m just entering my second year of PMR and I’m now down to 7.5 mgs o...

kentish61

•1 year ago

22 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2023

GCA temple pain getting worse again

Not fair!

Tooth abcess

liver and blackPudding

test my email

covid

Reading my symptoms

Energy back finally

Doctor won't diagnose PMR

update PMR or Neck Problem

good morning

PMR, travelling abroad, emergency pack of Pred ( “ sick day rules”) in case of illness

What to do if going up 5mg in a flare didnt work?

Orpington Support Group - Wednesday 6 September at 2pm

Do I have PMR? This is getting ridiculous.

I am so annoyed with myself: yo-yoing,i would value your thoughts

Possible new blood test marker for PMR?

PMR returns - maybe?

PMR and Covid vaccine

Does anyone take Dr. Megan's Nutranize for CGA? It has all the vitamins and supplements that are recommended. Take 2 in am and 2 in pm?

GCA return?

PMR Update

prednisolone

Another Inflammatory Marker?

Interview with Sarah L. Mackie, MD on Tocilizumab, steroids and the future of GCA treatment.

Tiredness tapering to 9

Covid jab and pausing methotrexate

Tapering and adrenal side effects?

Flare after vaccine

flare?

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