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PMRGCAuk

20,272 members • 37,956 posts

All posts for March 2015

Advice please

I started on mycophenalate several weeks ago and am at a dose of 1gm twice a day and currently on 16mg of prednisolone. I developed acid reflux a couple of...

I started on mycophenalate several weeks ago and am at a dose of 1gm twice a day...

Griggser

•9 years ago

8 Replies

Mtx effectiveness

Hi, I have joined this forum to try and get help and advice for my Mum who has had PMR for around 4 years, although the consultant insists she can't possibly...

Hi, I have joined this forum to try and get help and advice for my Mum who has h...

Jorobinson

•9 years ago

7 Replies

Methotrexate for GCA

Does anyone have experience of Methotrexate? I am about to start this having been on steroids 20mg a day since September 2014. I have had bad insomnia,...

Does anyone have experience of Methotrexate? I am about to start this having be...

PenelopeVita-Finzi

•9 years ago

13 Replies

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Statins

My Rheumatologist has prescribed statins (I do not have high cholesterol or high blood pressure). I am on a reducing steroid regime for GCA having started at...

My Rheumatologist has prescribed statins (I do not have high cholesterol or high...

Wengen

•9 years ago

14 Replies

The bad news and the good news

Hi, anyone who has read my recent posts know that I have had a pretty rough time of it when taken into hospital with blood in my urine and coming home feeling...

Hi, anyone who has read my recent posts know that I have had a pretty rough time...

Classicmichael

•9 years ago

13 Replies

Back on Prednisolone

Thank goodness for this forum, I can have a moan and people understand. Feeling a bit p***** off today, last prednisolone 17 September, not feeling so good...

Thank goodness for this forum, I can have a moan and people understand. Feeling...

Mischevious

•9 years ago

4 Replies

tingling

I have had pmr on and off for 4 years. however during recent snowy weather I did the splits in some mud and pulled muscles in my groin extremely painful but...

I have had pmr on and off for 4 years. however during recent snowy weather I did...

kingharold11

•9 years ago

1 Reply

Should I follow the reduction plan?

Good morning. I have been following a fairly rapid reduction plan following a negative GCA biopsy, I have reduced from 60mg to 20mg in 3 weeks with some side...

Good morning. I have been following a fairly rapid reduction plan following a n...

sealine30

•9 years ago

3 Replies

Amaurosis fugax

I have GCA and PMR. I had thought that all I needed to worry about is Prednisone. I described to one of my doctors a small eye incident. My eye exam was good....

I have GCA and PMR. I had thought that all I needed to worry about is Prednisone...

Asbeck

•9 years ago

7 Replies

Sleep pattern

After taking advice from here had developed a good sleep routine but over the last week gone to pot nytol stoped working in fact getting restless at night ,bad...

After taking advice from here had developed a good sleep routine but over the la...

olive2709

•9 years ago

3 Replies

eye ache

once again my eye is in pain and feels dry and heavy. I had my medication raised but still pain. any suggestions for relief??

once again my eye is in pain and feels dry and heavy. I had my medication raise...

Celestee

•9 years ago

1 Reply

Reducing Pred -Update

I saw my Dr today to discuss my experience of my first flare, explained I was doing well on 10mg of Pred but not quite so well on 9mg. Told him about this...

I saw my Dr today to discuss my experience of my first flare, explained I was do...

PJPS

•9 years ago

5 Replies

Gca and tcz

Has anyone out there been on actemra tcz for gca. Recommended by rheum so I can get off prednisone

Has anyone out there been on actemra tcz for gca. Recommended by rheum so I can...

bunky52

•9 years ago

4 Replies

Arthritis

I was diagnosed with Pmr a year ago but my Dr always thought I had something else going on. I have had x rays done that the results came back as showing no...

I was diagnosed with Pmr a year ago but my Dr always thought I had something els...

Bailybiscuit

•9 years ago

7 Replies

more predisone

a coupe of weeks ago I was hopeful because I was going down each week 1 mil of meds. until last when my neck pain and headaches return. called dr. he ordered...

a coupe of weeks ago I was hopeful because I was going down each week 1 mil of m...

Celestee

•9 years ago

7 Replies

3rd GCA episode in 18 months but Rheumi says it cannot be GCA, must be a migraine!

Had pmr for 8 years and then 3 GCA episodes in last 18 months. Had a very average Rheumi until last year when I saw a brilliant one but she went on maternity...

Had pmr for 8 years and then 3 GCA episodes in last 18 months. Had a very averag...

Rancho

•9 years ago

15 Replies

Reducing Pred during chemo

Hi all. I've had PMR for a couple of years and have been reducing my Pred by the very slow method and am currently down to 10mg. I know the rheumatologist...

Hi all. I've had PMR for a couple of years and have been reducing my Pred by th...

Juliemargaret59

•9 years ago

10 Replies

Latest appointment

Saw my rheumatologist yesterday and came away feeling as though I was being a bit of a nuisance and perhaps making a fuss, as she had more deserving people to...

Saw my rheumatologist yesterday and came away feeling as though I was being a bi...

Rjw2014

•9 years ago

14 Replies

Tray.

My gp has rung and advised to go back up to 15mgs pred for at least the next 10 days. He says there is no rush to reduce. I feel inside my head that there is....

My gp has rung and advised to go back up to 15mgs pred for at least the next 10 ...

pmrdec112014

•9 years ago

3 Replies

Tray

This is my current predicament....I was due to get up for work at 6.45 am this morn but have woken, having gone to bed the last few nights by 9 pm due to...

This is my current predicament....I was due to get up for work at 6.45 am this m...

pmrdec112014

•9 years ago

4 Replies

Thyroid and Pred

For info- PMR started in April 2012; diagnosed and Pred started in Dec 2012 Have just got blood test results for my thyroid function and for PMR inflammation...

For info- PMR started in April 2012; diagnosed and Pred started in Dec 2012 Hav...

suzieh

•9 years ago

4 Replies

Healing cuts while on Prednisolone

I have been on Pred for 5 years and now slowly dropping to 6 mg. Twelve months ago I knocked my leg while cycling, and since then the nurses at my GP surgery...

I have been on Pred for 5 years and now slowly dropping to 6 mg. Twelve months ...

hwigston

•9 years ago

23 Replies

Diet

Could any one reccomended a good diet for anybody with GCA as I have heard it can make a difference with the side effects of steriods etc any help would be...

Could any one reccomended a good diet for anybody with GCA as I have heard it ca...

Howard523

•9 years ago

10 Replies

GCA and stomach pain

Does any one suffer extreme pain in the stomach particularly at night when in bed after taking steriods at breakfast, omprazole at teatime. I get these systems...

Does any one suffer extreme pain in the stomach particularly at night when in be...

Howard523

•9 years ago

9 Replies

Oxford

Please is there a support group in or near Oxford

Howard523

•9 years ago

8 Replies

Gca

Please could you inform me of the reccomended time of day to take steriods for GCA Thanks

Please could you inform me of the reccomended time of day to take steriods for G...

Howard523

•9 years ago

2 Replies

Reducing prednisone

I am 51 and was diagnosed with PMR in January 14.i managed to get down to 4 mg in January this year but had a flare up of my ulcertive coloitus so was put back...

I am 51 and was diagnosed with PMR in January 14.i managed to get down to 4 mg i...

Hidden

•9 years ago

4 Replies

Predcontinuous use

I have been diagnosed for just over three years, have been on Prednisolone for over three years starting on 30mg day and I am now down to 4mg day, I have tried...

I have been diagnosed for just over three years, have been on Prednisolone for o...

Howells

•9 years ago

6 Replies

pred withdrawl

I have just reduced from 2 to 1and half and have arm and shoulder pain. should i go back to 2 or try to stay at 1and half and endure moderate pain ,in order to...

I have just reduced from 2 to 1and half and have arm and shoulder pain. should i...

43086

•9 years ago

5 Replies

TV coverage

It is up to each and everyone of us to contact ITV or Dr.Chris to put our case forward re PMR/GCA it is no use just one person...

It is up to each and everyone of us to contact ITV or Dr.Chris t...

angelone2

•9 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2015

Advice please

Mtx effectiveness

Methotrexate for GCA

Statins

The bad news and the good news

Back on Prednisolone

tingling

Should I follow the reduction plan?

Amaurosis fugax

Sleep pattern

eye ache

Reducing Pred -Update

Gca and tcz

Arthritis

more predisone

3rd GCA episode in 18 months but Rheumi says it cannot be GCA, must be a migraine!

Reducing Pred during chemo

Latest appointment

Tray.

Tray

Thyroid and Pred

Healing cuts while on Prednisolone

Diet

GCA and stomach pain

Oxford

Gca

Reducing prednisone

Predcontinuous use

pred withdrawl

TV coverage

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