Long Air traveling with 18 months suspected gca ? With daily dose of 10 mg prednisone. .

[Rajuguide]

My wife 72 , is on 10 mg prednisone, from last 18 months on suspected GCA! She will be traveling to india from USA ,18 hours flights in business class , I really worried , She donot want to change mind , as she miss , home , relatives ,from last 3 years due to carona and with this disease. I really worried and confused ! How safe it will be ?

[DorsetLady PMRGCAuk volunteer]

I travelled from UK to New Zealand (solo) when I had GCA -on 7mg - absolutely fine. Business class so well looked after -just request special assistance when booking. Make sure she carries medication in hand luggage and copy of prescription or list of meds.

Many have done long haul flights.

[Rajuguide in reply to DorsetLady]

thanks🙏 for your inspiration. I feel she will be on safe side .

[Rajuguide in reply to DorsetLady]

my wife is with this forum from last 1-1/2 year ,she is on steriod 10 mg . As you all motivated her to travel long flight total 18 hours ,from Washington to Bombay , believe me ,she , got no problem , and was quite comfortable,and now due to change of place , climate and social atmosphere, she is improving, , I will also like to write she had 10 injection in cold box , no airport immigration took any objection .

thanks everyone 🙏.

[DorsetLady PMRGCAuk volunteer in reply to Rajuguide]

Good, pleased to hear it- hope she continues to improve whilst in India. Thanks for letting us know.

[PMRpro Ambassador in reply to Rajuguide]

Glad to hear it. It is quite common apparently for people from the north of England with rheumatic disease to go into remission when they go home to the subcontinent!

[SheffieldJane]

I have just travelled to Australia from the U.K. Business Class , a stopover and airport assistance were the life savers. My Rheumatologist advised that I wear thigh high support stockings as we are slightly more in danger of DVT. I drank only water and chose very light bland foods from the menu. Good luck with your trip! Take spare Prednisalone and a copy of your prescription and your medication in carry on baggage.

[whitefishbay]

It will be absolutely fine and fun. Fun helps everything.

[Surrie]

I’m sorry to be so late replying but I have been out of reach. You have received very good advice from previous replies. I have not taken flights of that length- only 5 hours but have been fine.

My rheumatologist has always advised me to go immediately to an hospital emergency if I were to develop any vision problems and let them know you have GCA.

ENJOY YOUR TRIP.

Sandy (alias Surrie)

[Rajuguide]

thanks for advice, My wife have so fed up from GCA ? last 2 years , She wish to travel 18 hours flight to india at any cost . I also hope this change will give u turn to diease .