Saw my Rheumy today. Inflammation is all in the normal range. I had tapered to 8.5mg then went back up to 10 for a few days because of my jaw pain that originally cropped up along with all my PMR symptoms in the beginning. Then I started going back and forth between 9 and 10 with the idea of tapering again by 1/2 mg per step starting tomorrow. He wants me to taper down to 7 in the next 2 months and not pay attention to the jaw pain. Said it is probably TMJ. But I never had TMJ before so why now? Wants me to go get checked out for that. Said it couldn't be my PMR because it is only on one side!
When he mentioned that my inflammation was normal, I asked if that is because I am on Prednisone FOR the inflammation. He didn't give me an answer, just wants me to taper down before it "breaks up my bones". LOL However, he hasn't sent me for a Dexa scan either. So, wouldn't the Prednisone be controlling my inflammation?I also vaguely recall seeing that not all PMR patients have elevated inflammation markers.