One of our PMRGCAuk members has sent the following question:
"My mother has GCA which unfortunately resulted in 50% sight loss across both eyes. She has been on Tocilizumab for about 8 months now, and her steroids have been gradually reduced to now nil. Initially, she was happy to be off the steroids as they were causing some side effects – the usual ones. She has recently complained about blurred vision which is a known side effect of Tocilizumab. She is now wondering whether to go back onto the steroids as blurred 50% vision is making her feel worse about herself. She is also wondering if there are any alternatives to Tocilizumab".
Our member wondered if anyone had any experience of Tocilizumab, or knew of other peoples experience and whether they had gone back to steroids?