I see a rheumi every nine months so very lucky. I have a real problem telling her just how I feel. Many days I feel as though I have been beaten, everywhere hurts and although I am able to do many things it is only for short bursts and really struggle lifting etc. Her report to gp says no sign of gca or pmr but she wants me to stay on 10mg of methotrexate and 2mg of steroid. I am just managing at this level and don't ask for other treatment as feel I can't risk any problems. OH having chemo for non Hodgkin's lymphoma. He is doing amazingly well but they have found a patch on his lung and he has to have a non cancerous growth off of his neck. Tricky has he has very low platelets and may need infusion. I am so grateful to our local hospital. Every Doctor and nurse has been so good.
In my report my dexa scan is,lumbar spine -1.1 and hips -1.0. Rheumi said osteopenia so try and keep a careful watch on calcium and Vit D will check in two years. Are these ok for now?