Wouldn’t it be nice to be put in a coma for a few months and let the hospital reduce the steroids whilst you’re out of it? Wake up ah I feel good and off out for a jog.....
Laugh please....: Wouldn’t it be nice to be put in... - PMRGCAuk
As PMRpro says your symptoms could be SW - that sometimes happens when your body realises it’s not getting the same dose today as it did yesterday. Very often those symptoms replicate original symptoms - but not always - and usually only last 2-3 days - or until body gets used to new lower dose.
I didn’t get original pains, but just felt off colour, irritable and generally yucky! So we’re all different.
If the symptoms continue longer than 5-6 days then you probably have to consider it might be a flare.
Providing you could suspend the rules of physiology - use it or lose it when it comes to muscles!!! A physiotherapist friend had a subarachnoid bleed and was in a coma for about 10 days - she had to learn to walk and even sit up when she recovered because of the massive muscle loss.
But a week asleep sounds good to me at the moment too!
And BTW - back to 15mg sir, this isn't a race ...
It is muscle mass that goes - less muscle = less strength and it is much harder for older people to rebuild that muscle.
"In young, healthy adults subjected to bed rest, the loss of lower body lean mass appears to be on the order of 100-200 g·wk-1. LeBlanc et al. reported a total body lean mass loss of 2.6 kg following 119 days of bed rest in healthy young males; of this, 2.4 kg was from the legs (0.14 kg·wk-1) ....
No studies to date have directly compared young and older adults during bed rest. Nevertheless, data from the only study to examine older adults suggests that the loss of lean tissue in healthy older adults during bed rest far exceeds the losses experienced by their younger counterparts. Specifically, Kortebein et al. observed a 0.95 kg loss of lean leg mass (0.63 kg·wk-1) following just 10 days of bed rest in otherwise healthy older adults . Assuming the rate of muscle loss is somewhat linear during the initial days/weeks of bed rest, this represents an approximate 3 to 6-fold greater rate of muscle loss in bed-ridden older adults."
In simple numbers that means young healthy adults lose up to 200g/8oz of muscle a week on bedrest - so we could lose 1 kg/2lbs or more and most of it will be from the legs.
Part of it - but with sepsis there is a lot more to it and that much in a few days is exceptional and must have included a lot of fluid. Sepsis is a rampant form of inflammation - and that uses up a lot of energy so the patient typically loses a lot of weight inititally but it does then continue during the recovery phase too. Another episode just puts recovery back
Then I could loose steroid weight sugar cravings and have tapes played for living well being healthy. Oh I would love that!! My muscles are full of lard cheese and cake that’s why they don’t work. That’s my theory. I lost a lot of muscle strength waiting for my new hip then recovering later. I don’t think I’ve ever built it back up.
I know, i know! I think it was just so depressing putting on a stone in weight in three weeks that I just want to get the Pred intake down a bit quicker! I’m not getting the stiff neck & shoulder aches I had when I reduced from 16 to 15mg, just most of the other symptoms you posted in that very interesting article! Thanks for that, it helped me. But I’m suffering badly from (unrelated to PMR) lung issues from these storms, so whilst I can’t breathe & cant walk far, wrapped in blanket on the sofa, I may as well try & reduce a bit more! If it’s same again in 2 days time I will go up a 1mg for a few days (that’s what I did with the first reduction from 16 to 15!) I’m back on the keto diet, too, but still so hungry I could eat a horse all the time (another reason I want to get the Pred down!) I don’t give in to the cravings, but it’s hard. Whoops, didn’t mean to moan that much...time for afternoon film & crochet, feel like I’m about 100 today, David’s coma sounds nice, but I’m busy planning another two holidays, too, so all good fun...really! S x