Hi I have came off prednesilone mid december after 2 years and whilst initially ok for a week I now have aching groin, thighs and severe upper back pain - the back pain comes on during the night when I have been lying for a few hours? It feels fine during the day can anyone relate?
Upper back pain: Hi I have came off prednesilone... - PMRGCAuk
A top research doc asked me what I thought was the most important thing to be looked for by them in PMR/GCA. I think she expected me to say a better treatment - but it isn't. Abive all they need a reliable marker for PMR/GCA - doesn't matter if it is a blood test or an algorithm but there needs to be more evidence, Nothing wrong with pred used properly - but you have to know what it is you are looking at.
And youa re right - if paracetamol helps, the chances of it being PMR is marginal.