Has anyone heard of this supplement being used for chronic pain.
PEA Palmitoylethanolamide: Has anyone heard of this... - PMRGCAuk
PEA Palmitoylethanolamide
Written by
cranberryt
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Bit of a read I fear and I have only read the conclusion so far - which suggests it is more applicable in neuropathic pain than for something like PMR and is only really looked at in animal models as yet. However - who knows.
Thank you. Several people in a PMr FB group I follow have been using it with some success and I had never heard of anything it.
Do bear in mind a lot of people will claim something helped because of the financial investment they have made! But possibly worth a try - and an honest report!
There is also the possibility of the Placebo effect , clinically recognised fact now .
Plus , it may not be helping the PMR , GCA or any Steroid induced symptoms that people are having but actually improving some other sort of Nerve Pain or issue that they also have that they haven't mentioned in talking about their health issues ( or don't know they have!!).
When it comes to any supplement , rule of thumb for me is , take the suggestion but really research it yourself before you try it.
I check a lot of recommended Medical sites and the more recognised Disease Specific websites to see if it is being used or if there has been any conclusive results with various supplements.
I also triple check if there can be any interactions with any of my medications or other supplements , or, if it has shown adverse effects on people with certain illnesses or symptoms.
I then , consider the anecdotal evidence of patients , the cost versus it's talked of impact all round , before I consider investing the time and money in using any supplement as it often takes 4-6 weeks for these things to cause a significant improvement rather than a Placebo bounce.
If , on reflection , it doesn't seem to be getting significant support from various sources , I wait until more evidence is in .
Probably why , despite all the things out there , my OTT supplements still only include Turmeric , Garlic and the usual multi vitamin / mineral and Omega 3 ( and as people know I am always careful to say you still have to check it's ok for "You " to take it even when I recommend these ).
At the moment for example , I am trialling something I have been researching for a while , I had blood tests before trying it , and will have it tested again in a months time , only then, if I find it has made a substantial change to how I feel will I name what it is , provide links and my experience just to inform . It wouldn't be until I proved that I also found that I feel worse without it that I would also recommend it.
It's so hard on our bodies coping with the delicate balance of processing all the things we do need , and even the food that is good for us , that though I'm often eager to experiment in the hope of more relief , after doing that in the past , I am a lot more careful about it .
in reply to cranberryt
Apparently it's effects haven't been studied for more than 6months consumption. Thus the advice is to only take it for 3 to 6 months. There's a bucketload of articles on it indifferent contexts.
But if you also have neuropathic pain from another condition, it may be a good option .
There is also the placebo effect, not really a bad thing in something like this. If people believe it is helping, it is helping.
It is thought to generally help in chronic pain. It is actually classed as a dietary supplement in the US. You can buy it over the counter.
This article from 2016 found that a three month study found no superiority over placebo in a study of around 70 patients with neuropathic pain from spinal cord injury:
