Hi. GCA/PMR 8-2017, start 60mg prednisone. 10-2017 started weekly shots of Actemra and started tapering prednisone. Miracle happen Feb. 1,2018... I found this forum! I read the post of others, got educated more on these disease and began to believe “ I can get through this”. And I did. Last prednisone, 11-2018. Tapering off Actemra 7-2019!! I am doing great . I have found my “new normal”. Active ( running and exercising)but not as intense. Happy to be in Club Zero! Thank you to ALL who contributed to this forum!!
Success! Off of prednisone and Actemra. - PMRGCAuk
Great - long may it last! Do drop in occasionally!
Fabulous news Kentucky5. Congrats
Well done you. Always great to hear a success story. Keep well!
Congratulations! I can attest to feeling much better for the time I was taking Actemra.
Congrats, just like Gladys, someone who took part in the TCZ trial and 1 year later - into remission and still in remission.
Well done Kentucky5!
Drop in and let us know how you are doing. This is great news.
So happy for you , and so happy that all the folks on here were a help and support to you in your Mission to Club Zero!!
It's great for us all to here news like this , not just because it gives us all hope for a Pred free future , but also because we can feel we are still contributing to making a real difference in the World by giving others the encouragement and support they need when we often feel restricted from doing much else.
Don't forget , you need to keep pacing yourself for the next six months and resist jumping into the ' Old Habits' too quickly , your body is still trying to get back to being
100% ' Match Fit' and you don't want to push it now and waste all that good work.
Cock-a-hoop the ' New Normal' is working for you , hugs , Aunty B x
So pleased for you and great encouragement for everyone. Keep in touch if you can.
I am so happy to hear a success story. Gives me hope that this may one day happen for me as well. Some day I need to just hold on to something like that. So happy for you. Thanks.
Congrats!! I need to hear stories like this among all the posts that focus on medical/symptom woes, to provide hope and remind me that folks DO go into remission....we just don’t hear about it as often.
Thanks for sharing, and I wish you a future free from PMR!
Thank you everyone! 😊
You are my hero!!! I want to be just like you. I am down to 6 mg of prednisone and doing the Actemra every Monday. Can I ask if you had any side effects from the Actemra? My main complaint is tiredness, but there is also other stuff going on, and like everyone, I blame the prednisone but just wondering if some of it could be the Actemra. Congratulations on your renewed health!
Great news!! I'm so happy for you!