Time to give back. Can you help me?
This forum has been of great support to me in the 2 years since diagnosis. I've been through a lot as many of you have and last year was the worst. I'm down from 50mg to 7 mg. The journey has been full of ups and downs which I'm sure you can all relate to. No one should underestimate the life changing impact of these conditions. I've lost my house, my job and ended up back living at my mums and some horrific encounters with the DWP and Health Services which have left me devastated at times and wondering if it was worth while carrying on at all. . I'm doing a Masters Degree in Voice. This condition - while I wished I never had it has given me a new direction in life. I'm a singing teacher and professional singer. PMR, GCA and fybro have been devastating to my working life but I'm on my way back. Due to the impact of singing and teaching on the symptoms of my conditions, I am now fortunate to be doing my research project in this area as one a range of non medicinal options to counteract specific negative effects. Having experienced this first hand myself I have good insider knowledge. I also have read many, many stories of peoples journeys on this forum. I feel as if I'm near to coming out the other end. Making my way out of the black hole I felt at one point. I need your help to help. If I compile a questionnaire to inform my research and tell it how it really is would you help me? I need to show in the study who are the people suffering from PMR, GCA and fybromyalgia if you have that too. As I'm reading research and medical papers I'm establishing what I need to ask to get the biggest benefit from it. Would you all help me out and fill it in. Or even let me know if there are other questions you would like included. This changed my life in no small way.