Hello all, I have been on Actemra (tocilizumab) for GCA for 1 yr 9 months. I was on the drug trial. For me it has been marvellous and I started at one injection per week, self injecting and am just starting one every 4 weeks. This first four week one meant that right on the last day of the four weeks I had a relapse which the rheumy said meant I am not in remission but the injections are keeping it at bay. These new biologic drugs block the path of the cause of GCA I believe. I have had no side effects at all from the injections and pred. now down to 2 - 2.5 mg. Still get PMR so still very achy at night but so so much better than the vegetable I had become. I am on the Southend drug trial but in fact I live about two hours from Southend. I mistakedly posted this in answer to an old post and the PMRPRO suggested I re-post it. Best wishes to all the lovely people on this site.
GCA and Actemra.: Hello all, I have been on Actemra... - PMRGCAuk
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