Cannabidiol (CBD) and GCA treatment - all narrati... - PMRGCAuk

PMRGCAuk

20,301 members38,032 posts

Cannabidiol (CBD) and GCA treatment - all narratives welcome

Iwillwin123 profile image
13 Replies

If anyone has any commentary about using Cannabidiol ( CBD) for use in treating GCA or PMR or any form of Arteritis, it will be helpful to know of your experience, dosage, duration, method of usage. I have started on Actemra weekly SC at 162 mg since last week as treatment for my GCA with 45 mg pred daily currently.

Thankyou

Written by
Iwillwin123 profile image
Iwillwin123
To view profiles and participate in discussions please or .
Read more about...
13 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

This has been discussed a few times in this forum so it might be worth your time entering CBD into the search box and reading the previous posts.

Iwillwin123 profile image
Iwillwin123 in reply to DorsetLady

Thankyou for your reply.I did try to search but did not find much on CBD in conjunction with GCA....... Hence put out a pointed query......

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Iwillwin123

Ok. Don’t think it’s used much in GCA..... I didn’t use it with mine, but I did try it for arthritis but didn’t find it any help.

But as others have said, you won’t know if you don’t try!

Coriander000 profile image
Coriander000 in reply to Iwillwin123

I tried it for PMR but didn’t notice any improvement - maybe I didn’t persevere long enough .

PMRpro profile image
PMRproAmbassador

Please use the search facility at the top right and enter CBD. That will bring up a list of all the posts about it which are numerous.

Mourneriver profile image
Mourneriver

I have used drops in various strengths and now use patches. I use CBD for sleep and fatigue, I have also read that a study is being done in Israel using CBD as a steroid sparer. I have a salve which I use on my forehead where the GCA seems to clump, all I can say about the latter is that this patch is much less lumpy. My sleep is amazingly good and though I still need a doze after lunch , I don’t get the terrible fatigue, I used to have to lie down for a couple of hours.

Are you in the Uk ?

Navion profile image
Navion in reply to Mourneriver

When you use CBD for sleep, what time of day do you take it? I had tried it for my PMR before I went on prednisone and saw no real effect. I'm thinking I could just take some at night to help my sleep.

Iwillwin123 profile image
Iwillwin123

Thankyou for your reply . I will look up that Israel study. I am keen to know if it can work as a steroid sparer ...... I am not in the UK. Regards :)

PMRpro profile image
PMRproAmbassador in reply to Iwillwin123

It isn't for PMR/GCA I don't think - can't remember what though. And a steroid sparer for one thing may not work for another.

Iwillwin123 profile image
Iwillwin123 in reply to PMRpro

But my logic was that CBD could suppress the IL 2 cytokine pathway. I am on 50 mg steroid dose since 2 months . Already the Cushing Syndrome has shown up due to that . MTX as steroid sparer gave me too many side effects especially liver damage. I have started on subcute Actemra since a week. Will take one every week now for 3 months. This will hopefully suppress the IL 6 inflammation pathway. Have tested the IL 6 already as a baseline based on your input last time we interacted here. But then the whole inflammation story of GCA also has amongst other cytokines another actor the IL2 cytokine pathway .....correct ? If the CBD can suppress that too it is an added advantage ? Would you agree to this logic ? .......

PMRpro profile image
PMRproAmbassador in reply to Iwillwin123

In some cases I think yes - but not all. So it is a case of try ...

PMRHortons profile image
PMRHortons

I have recently tried CBD, and found it did absolutely nothing for me. Ether in terms of helping sleep or pain and stiffness relief. I think it is definitely one of those things that work for some and not for others

Iwillwin123 profile image
Iwillwin123 in reply to PMRHortons

Agree on that . It may or may not work . That is also why I decided to check with the folks here . The thing is book knowledge is one thing but real time inputs are extremely valuable.

You may also like...

GCA Treatment and Wine

because of the high dosage of PRED or any of the alternative treatments. Are any of you fellow...

GCA Alterma treatment

PMR Dx May 2016. Down to prednisone 6mg for 6 weeks . Few sniffles sneezes sore throat 1 1/2 week...

GCA/PMR and spa treatments

diagnosed last March with GCA and since then has successfully tapered to 9mg using DL 5 week taper...

To all GCA and PMR patients:

had a flare-up of PMR when taking 10mg and did, what we all do, and increased my Pred to my...

Stelara/ustekinumab for GCA treatment

Stelara/ustekinumab to treat my GCA. In the states anyway, it is currently used to treat those...