Nerve pain , recently had still having excruciating pain groin top of thigh bottom of back left side . On quite a few meds pain wont not go

[Greatbanks]

Have Copd fibromyalgia diabetes rhynards pernicious anemia pain is horrendous at min why would this just start ? Scared of meds oramorph Ect because Copd and the effect on breathing .Pregablin , tramadol nothing seems keep pain at bay 😢 any help suggestions . Could scream pain is so bad

[Hidden]

Hi great banks. It sounds like you are going through the mill. I have fibromylgia, diabetes and polymylgia rheumatica (this forum is for the latter). I can sympathise fully with the agony of nerve pain. Given the meds you are on and the obviously problem of opioids due to COPD you have tried most of the things I would suggest. There are 2 things I use with various degrees of success. First is a tens machine. It's my solution for that horrid sickly pain as involves no pills that make you feel.even more nauseaous. I don't know if you have tried that. Particularly good for my fibromyalgia pain that breaks through tramadol etc. The second is capsaicin cream. It helped my nerve pain and restless legs and is applied directly to area that hurts in very small doses. That's all I can think of. I hope you feel less pain soon and find something to distract from it.🌻

[Soraya_PMR in reply to Hidden]

Heat or ice packs?

[Hidden in reply to Soraya_PMR]

Funny with nerve pain. Ice has worked better than heat.

[Greatbanks in reply to Hidden]

Thank you for the reply 😊 . I’ve tried heat pads from chemist , hot and cold to see if helps heat Pad’s go onto clothes so not stay directly to spot of pain . Cold is a bit iffy for me with rhynards ! This is 2 weeks in a vet would of shot me lol 😂.im to max of pain meds at min ie what was 1pill 3 times times a day to 2 pills 3 x daily . Thank you for reply as examples!!

I’m at wits end please tell me pain will go away and this is just a one off 😢😢.

Thank you lovey people . Not able drive like this , .

[Blearyeyed in reply to Greatbanks]

You could try the capsicum cream or tiger balm on your pain areas after a warm bath and the use the heat pads that are designed to the shape of your body and have straps that tighten to concentrate the heat with pressure.

If you don't have that type and need help now , use usual heat pads but us an old tight or cord to hold it in place .

The symptoms you are describing sound like sciatic nerve pain , which can be doubly bad when you have Fibro , but often respond to cold . But if you have raynards too it may not be beneficial to you ice . Alternating cooling cream and then heat may help.

If it is sciatic nerve pain , which you can get from the immobile issues with PMR , light stretching often relieves the pressure on the nerve so that it moves and the pain reduces . As you say , that area can cause pain no pain killers seem to heal.

Lying on your bed on your stomach , head on your hands legs straight for about ten minutes helps lengthen the back and reduce the pressure , you can put the heat pad on the area as you lie there . Then roll slowly on your side into foetal position , holding your knees to your chest for a few moments , slowly straighten and roll on your back . stretch your arms above your head for a moment or two and flex your feet up and down .

Foot flexing exercises, and exercises when you lie on your back feet flat on the bed , knees bent , and push your feet into the bed so it feels like your buttocks are moving up off the bed a few times a day reduce the nerve pressure in the buttock area and the pain.

These sorts of exercises won't get rid of the pain instantly but will give some relief until the sciatic inflammation or trapping of the nerves have reduced.

Hope it gets better soon.

[Soraya_PMR]

Any chance you have kidney stones? Any pinkness/blood in your urine? I suggest this as you describe the pain as ‘excruciating’ And kidney stones are notorious for their agony. Also, hubby had them and his ‘warning’ was groin pain, no idea why. The kidneys aren’t lower back, but the ureters are as they come down to the bladder, and it’s here that the stones get lodged causing extreme pain.

Just googled “a persistent ache in the lower back, which is sometimes also felt in the groin – men may have pain in their testicles and scrotum

periods of intense pain in the back or side of your abdomen, or occasionally in your groin, which may last for minutes or hours”

If not that then I’d go see a chiropractor. I’m with you re pain killers, they only (hopefully) get rid of pain, but you need to know the cause, your body’s telling you something’s wrong, diagnosis needed before analgesia.

[Greatbanks in reply to Soraya_PMR]

Hi no chance of kidney stones ☹️. No pink when P. I have perniciousness anemia's also have B12 jabs , losing hair every time brush it hand fulls of it

[Fireleigh]

Oh dear, I do sympathise. It’s hard to keep going when you wake to another day of pain. I have had severe groin pain and pain in the buttocks, which I attribute to PMR, making it difficult to sit down. I find that doing the arthritis society exercises for back and buttocks does actually help. Problem is feeling well enough to do the exercises. You have to wait til you feel a little bit better, then try the exercise (on the bed) then rest for quite a while. They have a booklet showing you the exercise.

[PMRpro Ambassador in reply to Fireleigh]

Your pain sounds as if trochanteric/iliopsoas busitis may be a possibility - and buttock pain is often a sign of piriformis syndrome which can cause sciatica which may also cause pain where you describe. They aren't directly attributable to PMR but are found more in people with PMR and do improve with higher doses of pred. They can be dealt with separately though and that then often reduces the dose of pred you need.

[Fireleigh in reply to PMRpro]

Yes, I think that is what’s happening. The muscles in the bum are really painful. The piriformis I suppose to be technical, and maybe pressing on the sciatic nerve. I also have trochanteris bursitis which may be linked to the PMR. They are so close to each other I think they have become sensitised. And there is tightness in the muscles at the base of the spine so it’s hard to lie on my back but also hard to lie on the hip where the inflamed burser is. I am trying to break into the cycle by tackling one thing at a time, in this case the tight bum muscles. Thank you for commenting it’s a great help.

[PMRpro Ambassador in reply to Fireleigh]

What are you trying? I used to use Bowen therapy very successfully - for more than one thing. The bursitis needs steroid shots - and once you get that under reasonable control it makes the rest easier!!! It's like patting your head and rubbing your stomach ...

[Fireleigh in reply to PMRpro]

I should have added to my last message that most of my PMR is in the buttocks and down the front of the thighs. I feel I am improving on the PMR front but am held up by not being very mobile due to the sciatica. That’s why I wanted to break the cycle. My doctor says I must expect back pain after a long and active life, but I don’t accept it so I am consulting a physiotherapist. So far she has given me some well known exercises for backs and I am seeing her next week for massage. I have in the past found acupuncture useful. I have started Tai Chi which helps but I have to stop half way through because of fatigue. These things are best for me after 15 months. If the PMR carries on for years, I’ll have to try other therapies.

[Greatbanks in reply to PMRpro]

Thank you for reply , as I said I’m not knowledgeable on the terms and abbreviations, could you explain differences of the terms you you use please ? Sort to be a such a bother .

[PMRpro Ambassador in reply to Greatbanks]

Which in particular since I can't see what I've used besides PMR - which is polymyalgia rheumatica.

[Greatbanks in reply to Fireleigh]

That sounds promising but I have breathing probs lay flat is a problem

[GlynisE]

I have had nerve pain on my thigh which left me screaming too. Thankfully the prednisone has made it so much more bearable. Can you not take these?

[Greatbanks in reply to GlynisE]

I have steroids for my COPD and bronchitis and Asthma , I find steroids bloat badly and get thrush ,I’m on quite a few meds , had probs with left shoulder pain and arm movement and left leg hip circulation poor on left leg was told I’d had a mini TIA after a scan for suspected MS but turned out to be TIA. Had coristone injections for a while , hip replacement was spoken of at time but that Lady left have a baby so I got lost in the system.i’m not Knowledgeable on the terms used on here 😳 sorry ? Love some advice but not abbreviated if possible as far as knew it was fibromyalgia , rhaynards 😳 not up to date with the terms .

Any help I would be extremely helpful and explanation. If anyone has the time🙏🏻

I’m in agony at present scream worthy it’s really got me down . Cannot keep having this level of pain . Fibromyalgia is enough but this is excruciating pain .

Thank you for any help received .

Regards

[Hidden in reply to Greatbanks]

Great banks - hope you are feeling better. This forum is for people with polymyalgia rheumatica and giant cell arteritis. Thus the shorthand is based on our diagnosis and treatment needs. Perhaps one the of forums that is related to the conditions you have might be able to help you more specifically. I see you are a member of different ones - is there any help there that might be more pertinent?? If you are still in such pain the seek medical help asap.

[PMRpro Ambassador]

Sounds very much like a sacro-iliac joint problem which is affecting the sciatic nerve via low back muscles. I was admitted to hospital for management when it happened to me but I don't live in the UK. I think you probably need referral to an orthopaedic specialist - steroid injections/infusion is the magic approach for me. The source of the pain must be sought out and sorted - not just throw painkillers at it, especially when they don't work.

Although the sacroiliac pain is inflammation I found sitting with a hot water bottle over the area helped relax the muscles that were tight and making it worse.

[Fireleigh in reply to PMRpro]

And did you get better from it? I’ll try the hot water treatment.

[PMRpro Ambassador in reply to Fireleigh]

At the time and it is now manageable - but it recurs if I don;t watch out.

[Jazzys]

Greatbanks, have you considered that the groin pain could be related to your need of a hip replacement? I'm in great need of a hip replacement and the groin pain, bottom of my butt pain and pain down my led is all related to arthritis of my hip. Good luck to you finding an answer and a cure for your pain.