As promised, we are posting our new Community Guidelines ahead of our new Moderators joining us formally. This will remain a pinned post so that you know where to find it.
Director & Trustees of PMRGCAuk
PMRGCAuk HU Community Guidelines
Welcome to the PMRGCAuk Community!
We’re very glad you have chosen to be a part of our community offered by PMRGCAuk and HealthUnlocked (HU). This community supports people affected by Polymyalgia Rheumatica (PMR) and Giant Cell Arteritis (GCA) to understand and manage their condition better and share experiences.
The community is moderated by PMRGCAuk and HealthUnlocked. Please read our Community Guidelines, which are there to ensure we create and maintain a safe and supportive space for all our members.
1. Content posted by individual members should not be taken to represent the views of PMRGCAuk or HealthUnlocked.
2.The purpose of the forum is to share experiences of living with PMR or GCA, as a patient or partner/caregiver, to ask questions, and to offer support and relevant advice. Posting is taken as your agreement that the information you post is true and accurate to the best of your knowledge.
3. Please keep content broadly relevant to your experiences of living with PMR or GCA. We are a friendly community, welcome social interaction and want to meet the needs of everyone, but please be aware that the forum is part of the work of the charity and we are here to share experiences that are relevant to living with PMR or GCA. Members may be contacted by Administrators or Moderators if topics are not related to the purpose of the forum.
4. All Moderators have been trained by HealthUnlocked. Some Moderators may be part of the HU community and may post on issues they wish to as individuals. When acting in their capacity as Moderator they have the full support of PMRGCAuk and their decision on issues is final.
5. We enjoy and expect an atmosphere of mutual respect and politeness, even when opinions vary. Please word any posts or replies to posts politely.
6. If you post a link to your own blog or website which has no relevance to the purpose of the forum, we may turn off replying to your post on the forum. This will have the advantage of encouraging people to navigate to your site and avoid the development of long discussion threads which may not be pertinent to the forum.
7. Content should not be abusive, derogatory, sexually explicit or suggestive, or deliberately misleading.
8. Please only report posts if you believe someone else’s content violates the principle above (7). You can do this using the “Report” option. Use the dropdown menu to select the reason why you are reporting the content. Content that is felt to violate this policy may either be edited or removed. Reports are read by PMRGCAuk moderators and it is their judgement on what action, if any, is taken. More often than not the issue will be dealt with via private messaging.
9. Neither PMRGCAuk nor HealthUnlocked is responsible for any offence or injury that a member may draw from another member’s content.
10. Any content posted on this community can be read, used, reproduced, and cited by other users of the site, within the site. Please refrain from sharing other members' posts on the web outside the site. You have the option to delete content you posted.
11. When you post third-party information, such as information about new treatments, you are asked to provide references and links to sources wherever possible. Please ensure links are to a reputable site.
Moderation helps maintain a safe, positive environment for all members of the community. Content may be edited or removed to ensure that the community remains supportive and responsive for all members.
The community is open 24 hours a day, 7 days a week. Moderation occurs after posting and primarily between the hours of 9 AM and 5 PM GMT weekdays only.
Please note that PMRGCAuk does not endorse or recommend any specific products, services, therapies, or activities mentioned by any third party (individual or company).
Advertising of commercial services or products is discouraged. However, this should not stop members from recommending products or services that they have found useful or helpful in managing their condition.
In this community, there may be discussions of health-related issues and sharing of personal information.
Please note that the PMRGCAuk Community is an open site, meaning that any posts are searchable by internet search engines and can be shared via social media platforms. If you would rather your content was not searchable or shareable, you can select the visibility status of your post as visible to “Only followers in my community” before you click submit.
For your own safety, you should not disclose personal information such as your full name, email address, home address, telephone number, or any other information which could directly or indirectly identify you. If you wish to do so, please use the private messaging (chat) function.