something repeats: Having got myself off preds last... - PMRGCAuk

PMRGCAuk

20,306 members38,038 posts

something repeats

Valentina1 profile image
5 Replies

Having got myself off preds last July and Wham bang back. A recurring problem for me before was a painful lower lip with small white patches .. I was sent to the Consultant. I said it was the Preds. Total denial . This happened early summer last year. Toothpaste even hurt. The condition went itself when off preds. Well its coming back. Its Preds . Don't care what anyone says that's what it is. Its very uncomfortable. I have cancelled further appointments. Its there it will go when I can reduce. Anyone else had this?

My some of you are seemingly up all night. Sleep a problem. Yes it is for me.

Written by
Valentina1 profile image
Valentina1
To view profiles and participate in discussions please or .
5 Replies
SnazzyD profile image
SnazzyD

Hello, did you ever get it swabbed and sent to labs for culture to rule out Candida infection?

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Hi

Many don’t sleep it’s true, but we are a multi-national forum, so that’s why there’s always something going on!

I think it’s great😃

SheffieldJane profile image
SheffieldJane

I wonder if these patches are canker sores that can come with a weakened immune system? Perhaps salt water mouth washes and topical anaesthetic like for babies’ teething pain would help. It sounds viral, like something that will get through as soon as there is a chink in the body’s defence armour. Horrible!

I am one of those on night watch sometimes. There is usually someone on here. Insomnia can be lonely especially when your oh is snoring away like a Rhinoceros.

PMRpro profile image
PMRproAmbassador

There are contributors in the UK, the USA and Australia - someone is always awake...

I would wonder about thrush (which, when it affects the lips, doctors can be very dense about!!!). Or as SJ suggests,, canker sores.

"Candidiasis is an infection caused by a yeast-like fungus and in the case of the mouth and up to 90% of all people with HIV/Aids develop Candida infections. It is also common in people with weakened immune systems as well as babies and the elderly.

It can have a variety of causes, which include some medications such as antibiotics, corticosteroids, and some birth control pills, pregnancy, carrying excess weight or having pre-existing conditions such as diabetes, and psoriasis. Fortunately the treatment is generally fairly straightforward if you are otherwise healthy and a course of antifungal medications will effectively treat it."

mayoclinic.org/diseases-con...

and you would be surprised how many doctors can't recognise either of them!!!

This

sciencedirect.com/science/a...

mentions oral ulceration occurring in response to corticosteroids. I imagine it is not common (steroids are often used as treatment so it is counterintuitive) - but it does happen.

I wonder if taking some folic acid might help?

stellafmdm profile image
stellafmdm

Sounds like thrush to me! as to the tooth paste Try 'Little Teeth' The Dental Hospital advised me to try this when I had a very painful tongue! It works fine and is pain free!

You may also like...

Is this a flare or something else?

travelling back from a holiday at the time and put it down to that. Things improved when I got home

REPEATED FLARES

from head to toe and can hardly walk. Upper legs hurt. Hands now aching. Vision blurry on 15, and...

Help! Doctor has refused my Pred repeat request.

took an extra 5mg for 5 days and then went back to 5. What relief, the ache has gone. All I am...

Is it just a flare or something more sinister

need some expert advice .. I started off back in August on Pred 60 mg and I'm currently on 40 mg,...

GCA? or something else?

didn't go, so I took 10 mg of pred...in 30 minutes my vision was back to normal. I remained in a...