Rapid reduction!: I had been taking Lefluminide for... - PMRGCAuk

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Rapid reduction!

Jeanjean16 profile image
19 Replies

I had been taking Lefluminide for 10 weeks, but had to stop after blood test showed increase in liver toxicity . Saw a new young Rhuemy on Friday, she asked how long I had had PMR , when I told her three years, her response was " we must get you off steroids as soon as possible" this is the reduction plan she gave me:

7.5 for 1 month

5 for 1 month

4 for 1 month

3 for 1 month

Easy isn't it!

Merry Christmas to everyone e.

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Jeanjean16 profile image
Jeanjean16
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19 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

For her it is! No doubt you will inform her otherwise in due course

Good luck.

RunRabbitRun profile image
RunRabbitRun

So simple, we should all do it 🤣

What planet did you say she was from? ;)

Daisychain12 profile image
Daisychain12 in reply to RunRabbitRun

She’s from UR —Anus. Naughty me.

RunRabbitRun profile image
RunRabbitRun in reply to Daisychain12

*giggles* like a schoolgirl :)

PMRpro profile image
PMRproAmbassador

Well, whoop de do. She likes to cause her patients grief does she? I take it you just smiled sweetly and left hoping never to see her again?

Marijo1951 profile image
Marijo1951

Sad that she's a 'young' doctor. If her attitude is so doctrinaire and unreasonable already, what will she be like when she's 60?

PMRpro profile image
PMRproAmbassador in reply to Marijo1951

She MIGHT learn from experience...

Daisychain12 profile image
Daisychain12 in reply to PMRpro

Or not. Cxx

SheffieldJane profile image
SheffieldJane

😬

PMRCanada profile image
PMRCanada

Tsk, tsk, tsk. Yet another young Rheumy doing her “duty” suggesting a simplistic “textbook taper”.

This is such a common experience for PMR/GCA patients. Have to say my biggest frustration is the training and education these Rheumatologists receive about tapering, who then pass it along to their patients. Education that does not truly address the complexity and sensitivity needed to see each patient as a separate, unique individual/case. One size does not fit all.

Taper at your own pace as you see fit. Do not feel pressured to follow something that will result in a flare.

Merry Christmas to you and yours as well.

Daisychain12 profile image
Daisychain12 in reply to PMRCanada

Great advice as usual darling xxxx

Longtimer profile image
Longtimer

Oh dear, I was told that about a year ago from a rheumie...it left me in considerable pain...it was way too fast......it's about you, not her. In the end he had to let me do it my way....very slowly.....now it's manageable.

Good luck......

CT-5012 profile image
CT-5012

Oh gawd not another 🤬

Daisychain12 profile image
Daisychain12 in reply to CT-5012

They are everywhere like fleas!!!

HamishPMR profile image
HamishPMR

Best of luck with that!

Ha ha!!

Suffererc profile image
Suffererc

Ha ha 😂😂😂😂merry Christmas

Suffererc profile image
Suffererc

Shall we’ll all start telling them. 😂😂😂😂

Jackoh profile image
Jackoh

😬😬Now why didn't you think of that!

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