As an avid follower of this site with few posting I am Just curious. After being on Prednisone now for going on one year in January 2018 , I have noticed in the past few months some spontaneous bleeding where there are reddish spots on my arms. It isn't a lot of bleeding but kind of like oozing. Enough that I have to put a band aid on it. After a rocky beginning last year of going anywhere from 60 mg on down to 15 (depending on what doctor I saw), I am currently toggling between 8.0-7.5 mg.
Is this a normal side effect of prednisone?
Thank you for your continued guidance through this journey called PMR.
Probably. It is common to develop purpurae or petechiae - name depends on the size. Mine don't bleed, some people's do. It is due to the capillaries (tiniest blood vessels) becoming more delicate due to pred.
Thank you for your prompt response. I though it might be a side effect of the prednisone. Its just that it didn't happen in the beginning at the higher dosage so maybe it is from prolonged use of the medication? Wonder if that side effect diminishes as I lower my dose?
Everyone is different - mine happen, tend to be in the same places and for no apparent reason. Sometimes it is from scratching or even just rubbing! Others have far more trouble.
Do you know if this phenomena diminishes as people taper down of, if lucky enough, go into remission? It kind of bugs me as I was with some women friends and suddenly the blood starts oozing down my arm. Very annoying.
By the way, I see you live in Italy. I was born in Sicily and raised in the USA.
Yes it does get better as you reduce, early days I only had to look at a table edge or cupboard door and my skin bled. If I put an ordinary plaster on, it was even worse when I tried to take it off!
I discussed with practice nurse and she gave me some special plasters which are gentle on the skin as you remove them. Sorry can’t remember the name, but if you’re in US they would probably be different anyway. Sure if you asked at pharmacy they could help.
I don’t think the skin ever recovers completely from long term usage of Pred, it does remain more delicate than previously........although that could be age as well.🤨
I treat the capilliary bruises that sometimes bleed with vitamin K cream and arnica cream, found at drugstores and health food stores--in the U.S. They work for me.
YES! OMG, yes... My arms and legs are COVERED with what I call "blood marks." Some are just bruises but others are more like cuts. Thing is I don't know where hey come from, really. (?) They just kind of appear, I look down and I'll be bleeding. 😡
Thank you all for your feedback....this is quite a journey we are on??!!!
I have noticed that I am more prone to bruising after having been on prednisone for almost a year. Prednisone causes the skin to thin and therefore, I would think, might be more susceptible to both bruising and bleeding. I've not had the bleeding issue so far. My wishes that your journey is short through the land of PMR.
I'm assuming that if anyone is on a decoagulant (such as Clopidogrel, which I am on) this situation gets even worse. I had a small stroke a couple of years back. If pred does this to smaller blood vessels I'm pretty sure it's another reason my GP urges me to try to reduce my steroid dose. This is just conjecture, I have NO medical background myself.
I'm on Pradaxa - I occasionally bruise more than I did on just pred but if I miss a tablet (it is twice daily) it seems to reset until the next time so to speak. I have to hit myself fairly firmly to bruise - although my shins will bruise more easily if I have to rest my legs against something.
I am on 5mg and still got problems. My legs look like I have been through a load of carpet beaters all the time! I am still getting purpura mainly on my arms. I apparently have steroid skin.
Hi I am now at 12 mg and the bumps and scrapes which seemed dramatic at high levels of Pred look much less significant these days. I am having to stay at this level awhile longer as signs of slightly increased inflammation if not a 'flare' - but now the side effects I have had are diminishing so I'd be optimistic your skin will at least improve if not maybe completely.
Glad I am not the only one who only has to look at a door handle and start bleeding and then it takes weeks to heal properly. Mepore plasters (UK)are the best ones, they don't irritate the surrounding skin. I am on warfarin as well, which doesn't help.Happy Christmas to all
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