Between 1977 and 1990 I had a lot of surgery on my spine and the resulting nerve damage sometimes causes severe pain, usually in my back and legs. Fortunately these bouts are quite infrequent.
I developed PMR during one on these bouts earlier this year. I thought the pain and stiffness in my hips were new symptoms of my back problem and it was only when it moved into my shoulders and neck that I realised it must be something else.
At the end of June I started on 10mg pred with instructions to decrease 1mg per month starting August 1st. MXT was also suggested which I declined!
I don’t know what my effective starting dose might have been. At first my GP prescribed 30mg pred for 6 days followed by 30mg for 5 days, reducing by 5mg every 5 days which would take me to my first rheumatologist appointment. The rheumatologist then gave me an injection which wore off after 4 weeks. After which I was prescribed 10mg pred.
At first I felt quite well but got a bit over enthusiastic with an exercise and pulled a muscle in my low back. This has taken ages to heal. So often I find it difficult to know which pain is what!
I now have a lot of pain around my middle, in the muscles below my ribs both front and back. I am fairly sure this is nothing to do with my existing back problem but I don’t know if it may be PMR pain.
I am so confused. I don’t know if I should start today’s reduction from 9mg to 8mg as instructed, or stay at 9mg for now, or even go back to 10mg. If I go back to 10mg they may try and insist on MXT which I won’t take but at the moment just don’t feel up to the fight!
I would really appreciate your advise.