Sooooooooo a year ago I had severe butt pain in my left cheek but no pain down the leg, MRI showed a bulge, I was having neck and shoulder pain at the time but no one connected the two so wasn't diagnosed correctly. Thinking it was the bulge they did back surgery, pain went away for a couple of days and then was back----now however I really believe it was the PMR all along. Since then I've also been diagnosed with GCA, started on 65 mgs of prednisone, and have tapered to 40, I'm also on the Actemra injection once a week.
My question is at 40 mgs, the butt pain is back, and it HURTS! today I increased to 45 mgs and the pain is much better....... The sed rates are unbelievable very low, but I understand they will be on Actemra, so you need to then go by the symptoms. If 45 is containing the pain, Would it be your opinion that I should stay at 45 mg for awhile, before I try and taper again? I'm thinking the butt pain is a symptom of PMR.
I so appreciate this site and everyones help. I really think more information is gained here than from the doctors.