I thought I’d start a new thread following my post on Friday regarding my Synacthen Test & possible secondary adrenal insufficiency.
I’ve been on Prednisolone since February 2012 but l started with PMR Symptoms in October 2011
I’ve had an up n down relationship with Pred, never succeeding to get below 5mg (albeit l did try unsuccessfully to get to 4.5mg on DSMethod) l have also been on Methotrexate twice as a steroid sparer & am currently still taking it.
At the beginning of last year l noticed:~
l was avoiding people who were negative as l found they made me feel worse than l was.
I was intolerant of TV Programs, ie a new series ~ if it didn’t grab my attention then ‘Off’ no second chances
I love music, concerts & the theatre but my interest waned, l stopped booking tickets citing I’d be too tired or I’d seen them before (so not me)
If l was/am reading or writing & someone asks me a question, l have to stop, clear my head & then concentrate on them, this is from a person who was previously a Multi Tasker Extraordinaire
I started reducing my plans for each day, ie one thing a day as too tired to rush from one place to another
In fact everything was/is now at my pace, l knew l couldn’t/can’t rush as l start to perspire & then I feel worse, l’ve started giving myself an extra half hour to be ready on time & that helps.
I’d slump in the chair most of the day if left to my own devises & l was getting no pleasure from anything.
My GP Retired & l went to see a female GP in the practice for my routine check up & l mentioned how l was feeling, she asked me lots of questions & asked me to return in a week, when l did she explained she thought l was depressed. She thought PMR, Retiring Early, Breast Cancer, Mastectomy, Chemotherapy, it’s long term implications & side effects were enough to bring anyone down. So l duly started the Antidepressant’s & gradually my mood improved but not much change energy wise.
I find I’m ok in short spurts l call it getting ‘Angela Out of the Box’ 💁🏻♀️
But if l have a busy day either socially or just doing tasks l find the next day l’m beat.
I also find travelling any distance in the car very tiring, we stop regularly for comfort breaks & to stretch my legs.
We’ve just come back from holiday & we took the trip in easy sections, left a day early to travel to airport & stopped overnight before we flew. However, l felt so tired & below par much of the time, l can’t handle the heat anymore, it was like someone turned on a tap & all my energy drained away, l also had several episodes of excessive perspiring where my face & neck were so wet l had to get a towel to absorb it, l’d also had beads of perspiration around my wrists.
There were a couple of evenings at dinner where Terry asked me if I was ok as he could see the change in me, l describe it as my body searching for Cortisol, a bit simplistic really but l think that’s exactly what it is!..........
We didn’t take any trips out n about but mainly stayed on the ship, watched a movie in the afternoon, read & made some plans for our impending house move.
The move is being handled completely by professionals, l’ve just packed my shoe & bag collection ha,ha! I have a collection of Art Deco porcelain ladies that l won’t even let Terry touch so l want to pack them too but as for everything else, I’m going to leave it to the men!
I probably have other issues but can’t think of them right now, my mood is good but that could be down to the Antidepressant but physically l’m wrecked, l read what my friends do, where they’ve been etc & l feel like I’m losing out. I present a good front but honestly sometimes I’m not sure how l do it.
I believe the PMR is in remission or at least under control.
My husband says My Get Up & Go has Got Up & Gone!
I’d be interested to read your stories & experiences.
I have re-shared two links here that Mrs-CJ & SusanEleven posted as they are very interesting & thought they be easier to find at the end of this post.
Mrs N 💅🏼
aka Angela x