Websites - useful stuff, articles, resources

[Insight329]

I've been keeping a Word doc on articles that I knew I'd want to refer back to. Not sure if anyone interested, but here it is. Please forgive the format, I didn't know how to add a Word doc so I copied and pasted.

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Articles on: Few side effects due to PMR compared with an age-matched cohort not taking prednisone (Thank you PMRpro, I lifted your description from a post).

Polymyalgia Rheumatica and Steroid Side Effects: New Findings

practicalpainmanagement.com...

No Special Risks Seen with Long-Term Steroids in Polymyalgia Rheumatic

medpagetoday.com/rheumatolo...

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Articles on Diagnosis and treatment of PMR and GCA

uptodate.com/contents/diagn... UpToDate: Diagnosis of giant cell arteritis (April 2018)

Video of Dr. Kathryn Dao: Steroid Duration Requirements

rheumnow.com/video/dr-kathr...

Our approach to the diagnosis and treatment of polymyalgia rheumatica and giant cell (temporal) arteritis from the Royal College of Physicians of Edinburgh rcpe.ac.uk/journal/issue/jo...

2015 Recommendations for the Management of Polymyalgia Rheumatica C. Dejaco, et al ard.bmj.com/content/74/10/1799

Treatment of giant cell (temporal) arteritis by Gene G. Hunder, MD uptodate.com/contents/treat...

Giant cell arteritis: an updated review (2008) from the Wiley Online Library onlinelibrary.wiley.com/doi...

The spectrum of giant cell arteritis and polymyalgia rheumatica: revisiting the concept of the disease

academic.oup.com/rheumatolo...

Latest Advances in the Diagnosis and Treatment of Polymyalgia (Nov, 2015)

practicalpainmanagement.com...

Polymyalgia Rheumatica Overview (From Practical Pain Management authors out of Mayo Clinic)

practicalpainmanagement.com...

Polymyalgia Rheumatica Treatment (from Practical Pain Management authors out of Mayo Clinic)

practicalpainmanagement.com...

Drugs that interact with Prednisone

drugs.com/drug-interactions...

DorsetLady’s Info for new patients

healthunlocked.com/pmrgcauk...

Clinical challenges of diagnosing and managing giant cell arteritis by John H. Stone

academic.oup.com/rheumatolo...

"Head to Toe" Mamici1's guide to signs and symptoms

healthunlocked.com/pmrgcauk...

"I suddenly felt I'd aged": A qualitative study of patient experiences of polymyalgia rheumatica eprints.whiterose.ac.uk/852...

uptodate.com/contents/clini... Clinical manifestations and diagnosis of polymyalgia rheumatica by William P Docken; Section Editor Eric L Matteson

What is the impact of giant cell arteritis on patients’ lives? A UK qualitative study ncbi.nlm.nih.gov/pmc/articl...

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Steroid Reduction and Plans

Steroid Taper App steroidtaper.azurewebsites....

Dead Slow and Nearly Stop Plan healthunlocked.com/pmrgcauk...

DorsetLady’s simple taper:

healthunlocked.com/pmrgcauk...

Dorset Lady’s Tapering from 80 mg – 15 mg healthunlocked.com/pmrgcauk...

Video of Dr. Kathryn Dao: Steroid Duration Requirements

rheumnow.com/video/dr-kathr...

Reducing Steroids while on a Low Dose & Activating the Adrenal Glands by Marian Mesker

cssassociation.org/patient-...

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Articles on Adrenals...

Adrenal Insufficiency in Corticosteroids (JCEM)academic.oup.com/jcem/artic...

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Articles on Tocilizumab (Actemra)

nice.org.uk/guidance/TA518

An Efficacy and Safety Study of Tocilizumab (RoActemra/Actemra) in Participants with Giant Cell Arteritis (GCA) clinicaltrials.gov/ct2/show...

Mayo Clinic Side Effects of Tocilizumab

mayoclinic.org/drugs-supple...

Annals of the Rheumatic Diseases (Tocilizumab may increase the amount of cholesterol in the blood, but not the most damaging type of cholesterol) ard.bmj.com/content/suppl/2...

Breakthrough treatment for rheumatics: Common arthritis drug has been found to be effective for rare and debilitating rheumatic conditions dailymail.co.uk/health/arti...

Actemra label - highlights of prescribing information accessdata.fda.gov/drugsatf...

Clinical challenges of diagnosing and managing giant cell arteritism academic.oup.com/rheumatolo....

PubMed Health: Tocilizumab (Intravenous route, Subcutaneous route) ncbi.nlm.nih.gov/pubmedheal...

sciencedirect.com/science/a... European Journal of Internal Medicine: Biological treatments in giant cell arteritis and Tarayasu arteritis

nejm.org/doi/full/10.1056/N... Giant-Cell Arteritis – More Ecstasy, Less Agony; New England Journal of Medicine Editorial July 27, 2017

medpagetoday.com/rheumatolo... MedPage Today: Biologics Differ in Safety Risks – Infection risks higer for tocilizumab

ncbi.nlm.nih.gov/pubmed/281... Pub Med Short-course tocilizumab increases risk of hepatitis B virus reactivation in patients with rheumatoid arthritis: a prospective clinical observation.

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Articles on Acid Reflux

Acid reflux drug linked to more than double risk of stomach cancer – study

theguardian.com/science/201...

Long-term proton pump inhibitors and risk of gastric cancer development after treatment for Helicobacter pylori: a population-based study gut.bmj.com/content/early/2...

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Articles on Food, Diabetes, Misc Interesting facts

foodpsychology.cornell.edu/... The Color of Your Plates Matter

foodpsychology.cornell.edu/... The Large Plate Mistake

pmr-gca-northeast.org.uk/as... Demystifying Diabetes

cosmopolitan.com/uk/body/di... How you might be making yourself lactose intolerant without realizing.

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Articles on Cholesterol

Olive-Oil-Enriched Dark Chocolate May Improve Endothelial Function medscape.com/viewarticle/88...

Cholesterol Tests – know our numbers

heartuk.org.uk/health-and-h...

From: The JAMA Network; Research Letter: Association of Baseline Statin Use Among Older Adults without Clinical Cardiovascular Disease in the SPRINT Trial

jamanetwork.com/journals/ja...

From The JAMA Network: Effect of Statin Treatment vs Usual Care on Primary Cardiovascular Prevention Among Older Adults: The ALLHAT-LLT Randomized Clinical Trial

jamanetwork.com/journals/ja...

From The JAMA Network: (Editor’s Note) Risks of Statin Therapy in Older Adults

jamanetwork.com/journals/ja...

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Articles on Bone Health

New Wall Street Journal Article on the Benefits of Bisphosphonates Outweighing the Risks for many patients nof.org/news/new-wall-stree...

Combination of Micronutrients for Bone (COMB) study: Bond Density after Micronutrient Intervention.

hindawi.com/journals/jeph/2...

The COMB Study and Vitamin K2 for Bone Health (News in Nutrition) blog.newsinnutrition.com/20...

2017 American College of Rheumatology Guideline for the Prevention and Treatment of Glucocorticoid-Induced Osteoporosis (Lenore Buckley, et al) rheumatology.org/Portals/0/...

7 superfoods that help decrease bone breakdown betterbones.com/bone-nutrit...

Dried Plums, Prunes, and Bone Health: A Comprehensive Review ncbi.nlm.nih.gov/pmc/articl...

Short-Term Effects of Kefir-Fermented Milk Consumption on Bone Mineral Density and Bone Metabolism in a Randomized Clinical Trial of Osteoporotic Patients journals.plos.org/plosone/a...

A systematic Review of the Efficacy of Bisphosphonates ti.ubc.ca/2011/02/23/bispho...

Bisphosphonates: Do they prevent or cause bone fractures?

ti.ubc.ca/2011/02/23/bispho...

The effect of long-term bisphosphonate therapy on trabecular bone strength and microcrack density from Bone & Joint Research

bjr.boneandjoint.org.uk/con...

Rethinking the Appraisal and Approval of Drugs for Fracture Prevention frontiersin.org/articles/10...

Osteoporosis: the emperor has no clothes ncbi.nlm.nih.gov/pmc/articl...

Bisphosphonates for treating osteoporosis caused by the use of steroids cochrane.org/CD001347/MUSKE...

How do I get the vitamin D my body needs?

vitamindcouncil.org/about-v...

HeronNS: "My Osteoporosis Journey"

healthunlocked.com/pmrgcauk...

How I (Insight329) approached my doc to get off AA: healthunlocked.com/pmrgcauk...

ncbi.nlm.nih.gov/pmc/articl... Long-term effects of bisphosphonate therapy: perforations, microcracks and mechanical properties

womenshealthnetwork.com/com... Bisphosphonates make bones weaker, not stronger

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Articles on Methotrexate and steroids

Long-term follow-up of polymyalgia rheumatica patients treated with methotrexate and steroids

clinexprheumatol.org/articl...

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Articles on fatigue and pacing

Fatigue- in 13 different guises

healthunlocked.com/pmrgcauk...

The Spoon Theory and The Gorilla In Your House

rarainbow.wordpress.com/201...

Pacing _ I'm always on about it in PMR/GCA, here are some tips from PMRpro

healthunlocked.com/pmrgcauk...

Diagram of the Spoon Theory

healthunlocked.com/pmrgcauk...

Living with a chronic illness:

themighty.com/2017/02/docto...

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Coping with Dry Eyes and Mouth

lupusuk.org.uk/dry-eyes-and...

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Misc:

Site to inquire about the DVD “You are Not Alone” produced by PMR&GCAuk North East Support

pmr-gca-northeast.org.uk/

[Insight329]

Also, if anyone would like me to add a journal, I can edit the post and add it. Just send me the site.

[JanetGarrettN in reply to Insight329]

Insight329 Well we are birds of a feather 🐦🐤🐥 I do the same sort of thing I keep it on my Google Drive. Thanks so much for sharing.

Janet

[Hidden]

This is FABULOUS!!!!! Thank you.

[micheleinnaples]

I am thoroughly impressed! Many thanks for your kind efforts!

[Insight329 in reply to micheleinnaples]

Ha! I did it for me. I was tired of wanting to find an article that was referenced and not remembering what thread it was included in. I was constantly searching posts looking for something. So I finally started to log them down. Last night, it occurred to me that maybe it would help others, too.

So if any of you have sites that you'd like to have included in the list, I'm more than happy to add it. I think all I'd have to do is edit the post to add it. Just respond to the post or message me.

When wanting to find an article included in the list, I hope you can just type Websites in the Search PMRGCAuk button and maybe it will come up. I haven't tried it yet, but fingers crossed. Or you could do a search on my posts. Either way, I hope it will be of some assistance.

My apologies that it's not pretty to read. Cut/Paste didn't transfer as well as I had hoped.

[Polywotsit PMRGCAuk team member]

This is super! Thanks for generously sharing it. We have pinned it to the sidebar so that people can find it easily.

[Insight329 in reply to Polywotsit]

You are most welcome! The information that is shared in this site is invaluable. There is nothing that I can do to repay the charity, you Aunties, and the contributors for all of the assistance I have gotten from the advice here.

[PMRpro Ambassador in reply to Polywotsit]

Thank you Kate - isn't it excellent!

[yogabonnie]

OMG PMRPRO this is amazing and thank you very much!!!!

[yogabonnie]

OH! It's Insight 329. I thought Pmr pro. THANK you Insight 329. Same sentiment. prednisone brain. I am copying this for my doctor!

[Insight329 in reply to yogabonnie]

Laughing, yep, that darn Pred Brain. Gets us when we least expect it. Today I was trying to work out a very simple problem at work that didn't have many consequences either way but I had looked at both sides so much that when my Director happened to pop into my office I yelled, "THANK GOD YOU ARE HERE. MAKE THIS DECISION FOR ME!" It was like an answer couldn't find it's way out of the fog.

[yogabonnie in reply to Insight329]

ha. Exactly!! and I have always had this trouble. (libra...must weigh both sides) can't ever decide between m&ms or malted milk balls.. (smarties and malteesers) and now with prednisone I am ALWAYS undecided and confused! (BUT NOW because I am sooooo hungry I just have both! ha!

[Insight329 in reply to yogabonnie]

Malted Milk Balls ALWAYS! Forget the other 3. But throw in Almond Joy and you've got me confused again. (Note to self: DO NOT STOP ON THE WAY HOME AND PICK ANY OF THESE UP... CARBS!!! And no self-control.)

[Joyce1952 in reply to yogabonnie]

I used to be undecided, now I'm not so sure. No way can I make decisions. I blame the fact I am a Gemini....

[PMRpro Ambassador in reply to yogabonnie]

Hehe - many are links I have bookmarked on my computer but I have never got round to doing what Insight did (too busy elsewhere for some reason, can't imagine what I'm doing...)

Brilliant though - especially as I suggested to Kate it should be pinned. We have a similar resources thread on another forum because there we were not allowed to post links except within the site and that made it so much easier.

[SheffieldJane]

Thanks for the trouble you took!

[Insight329]

You're welcome, Jane!

[Jackoh]

That is so useful. Thank you.

[Insight329 in reply to Jackoh]

Most welcome!

[Sho-Sho]

Thank you, great idea, really useful to have all the references together.

Sho Sho

[nuigini]

I've saved all the same ones, but not in a nice format like this. Thanks!!!

[HeronNS]

Great list. You might like to add these two, for bones, not PMR:

ti.ubc.ca/2012/01/24/a-syst...

ti.ubc.ca/2011/02/23/bispho...

[Insight329 in reply to HeronNS]

Excellent! Will do.

[Joyce1952]

I can't find the Thread about Lumps on Left Labia. I was given 50 Days of Antibiotics for a lump on my Labia. Just as the Course ended the lump disappeared. Doctor didn't know if this was a Boil, Abscess or whatever, she just said be thankful it's away. Now it's back with a vengeance!! What is this and why so common on the LHS? I have PMR and am down to 5mg Prednisolone daily.