I have GCA (diagnosed Feb 2017) I am currently on 7mg, (supposed to be reducing 1mg a month and should by now be on 6mg, but couldn't cope so went back to 7mg). However my problems started end of Nov. 2017 when I was on 8mg. and tried going down to 7mg.
Problems started with diarrhoea (diagnosed as food poisoning). A few days later I had sharp, stabbing pains in the left side of my chest, under my breast. I was checked out at the hospital for either a possible blood clot or heart problems. Given the all clear on them.
Stabbing pains continued (very severe), but a few days later I also developed soreness in that area (so much so I couldn't bear anything on my skin in that area), burning feeling on the skin, itchiness, but too sore to scratch, and numbness. These were all over my breast and round my left side.
In Dec. went to the doctor. She diagnosed a trapped nerve and gave me Amitriptyline. No use at all and nasty side effects. I went back to her yesterday (23rd Jan) because the pain is awful and I couldn't stand it any longer, She has given me Codeine Phosphate 15mg and Gabapentin 300 mg 3 x a day, but so far they haven't relieved the sharp stabbing pains at all.
I am wondering could I have reduced to soon? Has anyone else experienced these symptoms while reducing?
Thanks for any help/advice you can give me.