FORTEO for bone fractures: I’m giving myself daily... - PMRGCAuk

PMRGCAuk

20,122 members37,704 posts

FORTEO for bone fractures

EmmaLaura profile image
2 Replies

I’m giving myself daily injections of FORTEO since nov 06,17. Also, I have PMR/GCA. I never show lab results supporting my diagnoses; however the biopsy was positive for GCA and I have monthly infusions of actemra to prevent blindness and to allow me to get off prednisone. 7 mg now on slow taper. The FORTEO was allowed because of several back fractures although I only show pinea. The FORTEO is working already. I had adjustment issues to self injection and each time I was off FORTEO I had a lot of pain. I feel my strength to stand up from squatting position has improved just in the 6 or 7 weeks I’ve been on it. I have a grant from Lilly pharma. Due to its high copay. It seems to be a lifesaver . Has anyone else had this positive result from FORTEO?

Written by
EmmaLaura profile image
EmmaLaura
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Celtic profile image
CelticPMRGCAuk volunteer

Emma, although I have no personal experience with Forteo, my elderly aunt was on it for two years following a spinal fracture. The spinal fracture occurred in spite of her having been on bisphosphonates for many years. She tolerated the Forteo injections exceptionally well and her bone density improved immensely, so much so that during her 80’s she was still able to attend the gym and continue with her favourite ballroom dancing nights! I do hope it will continue to prove successful for you, too.

EmmaLaura profile image
EmmaLaura in reply to Celtic

A wonderful outcome for your dear aunt. Hoping for mine, too!

🧘‍♀️🏊‍♀️🚲

You may also like...

FORTEO yes or no?

candidate for FORTEO. Please share your experiences with me on this bone building injection

prednisone, methotrexate, forteo

with new fractures in spine. I finally decided to face my fear and go on the bone med Forteo. I...

Bisphosphonates for wedge fractures

by, showed osteopenia and query compression fractures. A follow up xray has confirmed fractures at...

T-11 fracture! No wonder it hurts!

out yesterday’s Xrays show l have a spinal fracture at T-11. (Thoracic fracture advice most...

Fractured ankle

combined with the PMR/GCA. As mentioned before, I am also receiving the Actemra IV for the GCA...