Blood results : Just got bloods back and from what... - PMRGCAuk

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Blood results

Allsgrandso profile image
Allsgrandso
โ€ข22 Replies

Just got bloods back and from what I can gather my crp is now .5 and it was 48.7 in July. My esr is now 3 and it was 53 in July.

Feel like doing a wee happy dance here ๐Ÿ’ƒ๐Ÿค— delighted and wanted to share x

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Allsgrandso profile image
Allsgrandso
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22 Replies
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SheffieldJane profile image
SheffieldJane

Yay! ๐Ÿ‘

PMRpro profile image
PMRproAmbassador

Excellent - are you now reducing?

Allsgrandso profile image
Allsgrandso in reply to PMRpro

Yes Iโ€™m nearly there with tortoise not hare method going from 10mg to 9. Day 25 today and feel really good apart from bit of soreness and stiffness in shoulders first thing. Due back to rheumatologist next week.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Well done!

Hollyseden profile image
Hollyseden

๐Ÿ‘๐Ÿ‘๐Ÿ‘ great news!

Mariemcdo profile image
Mariemcdo

Dance and be joyful... me too CRP is down this month from10 to 8 and ESR down from 5 to 3 so I too am dancing and cautiously celebrating. 1 year into the dis- ease and have managed to taper down to 2 mg per day and no aches or pains. Still struggeling with fatigue though. Still using lots of alternative treatments and supplements to support the healing x

Allsgrandso profile image
Allsgrandso in reply to Mariemcdo

Thatโ€™s fabulous Mariemcdo ๐Ÿ‘๐Ÿ‘๐Ÿ‘ 2mg seems like a long way off but slowly slowly Iโ€™ve learned from the wise ones here ๐Ÿ™

powerwalk profile image
powerwalk in reply to Mariemcdo

Oh the fatigue is just nauseating. Very hard to handle - most days I just want to fall asleep at my desk.

Allsgrandso profile image
Allsgrandso in reply to powerwalk

Oh dear! Are you on a low dose of preds now? Is that why you are so tired? X

powerwalk profile image
powerwalk in reply to Allsgrandso

yeah on 2mg. I feel like hell - I just can't fope with the tiredness - its been going on so long.

powerwalk profile image
powerwalk in reply to powerwalk

ha ha - COPE - not fope!!!

PMRpro profile image
PMRproAmbassador in reply to powerwalk

You need to get your doctor to do some adrenal function investigation - that is the most likely reason for such a level of fatigue at this stage.

A synacthen/ACTH stimulation test would be a good idea.

powerwalk profile image
powerwalk in reply to PMRpro

thank you

Mariemcdo profile image
Mariemcdo in reply to powerwalk

Have had to hand my notice in at school! Just can't do it any more too tired and exhausted.

PMRpro profile image
PMRproAmbassador in reply to Mariemcdo

Then you too need to have your adrenal function assessed.

powerwalk profile image
powerwalk in reply to Mariemcdo

know the feeling - been tempted myself. I keep thinking "next week I'll feel better"!!!

yogabonnie profile image
yogabonnie

Happy Happy dance!

Jackoh profile image
Jackoh

Well done! Xx

Rugger profile image
Rugger

Is your name really "All's Grand So...."? In any case, all is grand just now!

Take it slowly but surely. I'm tapering at 0.5mg per month now, after a flare this summer, when I had to increase my pred from 4mg to 10mg. It seems slow, but 1mg per month was obviously too fast for my PMR and my figures crept up. Keep an eye on them so you can nip any rise in the bud and remember the guide about not reducing your pred by more than 10% of the previous dose.

Best wishes.

Me: PMR 19 months on 7mg pred.

Allsgrandso profile image
Allsgrandso in reply to Rugger

Yes allโ€™s grand so is the name lol thanks for the good advice Rugger. Iโ€™m very aware they could go back up if I move to fast. That must have been really annoying getting to 4 and then having to go back up to 10mg. I feel like Iโ€™m better the past few weeks but still pacing myself as best I can. Hopefully it will pay off. Thanks for good advice x

newgirl73 profile image
newgirl73

Dancing with you! So good to hear your good news. I heard this afternoon my CRP is the same as yours, down from 75 in October on diagnosis of PMR, then to 24 so pred down from 15mg to 13mg for last fortnight. The fatigue is something other - so strange to feel capable of walking the length of the supermarket with eyes closed - but don't!!! Again, great news.

Allsgrandso profile image
Allsgrandso in reply to newgirl73

Itโ€™s a brilliant feeling newgirl ๐Ÿค— well done! Funny thing Iโ€™ve no fatigue at all past few weeks, just feel normal again. Onwards and upwards x

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