First of all thank you for all the wise, wonderful, and witty posters, and the expert ladies on this site. Over the past months, you have all cheered me up and given me so much helpful information. Now I need to ask for your advice. I’ve had PMR/GCA since 2010, unrecognized and untreated until a visit to Emergency for pain in 2013. Then prescribed 50 mg prednisone for PMR pain/stiffness and GCA symptoms despite no finding on temporal artery biopsy. Since 2013 I have reduced, with many ups and downs, to II mg in January when I had a very bad flare. Hung on at 15mg until July when CRP went up to 32 and Rheumatologist finally put me up to 30mg but with dire warnings to reduce very quickly (30-25-20- to 15 over 4 weeks).
I think this is way too fast as temple pain increased at 20mg. Since 2013 I have had many side effects from the prednisone including the big pumpkin face and the prednisone belly (a big offence to my dwindling 70 yr. old vanity). Over the past years, apparently due to immunocompromised system due to pred, I’ve had a Cryptococcus lung nodule, sinus infections, cataracts, a colon abscess. All fixed now so I’m doing well, in my alternate reality of the PMR world.
How to proceed? I feel as if my choices are to obey docs and feel awful or reduce by DSNS and take the consequences. How long to stay on 25mg as it seems the lowest I can go? I would love to hear from anyone with a long history (years now) of taking prednisone in this kind of situation.
Thank you all again