Hi everyone, I'm sure a lot of you have heard my story already, I was diagnosed with PMR first in January 2015, and I was on 20mg, only when I was reducing down, that the headaches developed, and then diagnosed with GCA, I was hospitalized and i had a positive biopsy, and I was on 60 mg, but obviously was not enough, I had unbearable headache and then my sight went for about 15min, which was so frightening, but I was lucky it returned, and had a couple of episodes of this, my pred was increased to 80mg and I was fine,
I did start with neck pain, and to this day I always have a little neck pain and groin pain in right leg, only on movement,
I'm down to 3. 5 mg pred, my ESR and CRP always reflect on pain I'm having, and in April CRP 3.5 and ESR 5
In May I had a lot of thigh pain and neck pain ( thigh pain and neck pain is what I started off with ) so didn't increase my pred and after 2 weeks it settled down again.
I was back with rheumatologist yesterday and to my surprise my levels were up well CRP was 16 and ESR was 25 so she wants me to up my dose to 20mg. Pred, Cause she said we can't take a chance, so don't want to increase my dose. ( had terrible side effects )
I had a stomach bug 2 weeks ago wondering if that has anything to do with it? and I've been taken 2 oz of root ginger in orange for past 2 years and firmly believe it keeps the inflammation down, but I was away for just a week there came back last Sunday, so didn't have any ginger, would love some feedback on this, thanks to everyone here,. You all take the loneliness out of this illness, thanks for reading