I've been Living the PMR Dragon since 2013. I Started high dose (20 mg) pred and got the diagnostic overnight response! Pain reduced dramatically! Time went on, and I learned all about taming my Dragon with Prednisone and life changes. I Managed the moon face, weight gain, fatigue, profuse sweating, FATIGUE, short temper, and all the rest of PMR/pred experience. ( This forum was my medical school, advisor, support community, and 2am -can't -sleep- friend.)
This spring, I was still at 3 mg prednisone when I fell ill with a nasty respiratory bug and pneumonia,and was put on a "prednisone burst" for 2weeks. After a month, as I recovered from the pneumonia episode, I began to feel less well...pain began to return slowly, shoulders, neck, back, hips, the list goes on.... doctors not much help, just gave pain pills and I pretended Im a normal person, this could not possibly be a flare!
Every morning I woke and started my day with pain in shoulders, back and hips. It kept getting worse and finally, two days ago, I upped my prednisone to 10 mg (from 3) to see if that might possibly help. Guess what!, it worked! The pain backed off, and I shoved the pain pills to the back of the cabinet. This is my first serious FLARE! And my Dragon Is Back!
Obviously, my PMR is still alive, and something (flu, pneumonia, whatever!) caused it to reawaken! It took about a month to really began to roar! This is not fun!
I will stay at 10 mg for a couple of days, then gently begin to taper my prednisone.