Have seen a new rhumatalogue this morning. Very thorough, did some X-rays, has ordered some more for later this week and wants me to be off steroids by the end of the month! Arghhhhhh
I can understand why...there has been no confirmed diagnosis and the only way is for me to reduce down to being symptomatic again (if I am) and then have blood tests.
I am currently on 12mg reducing to 9mg tomorrow. 6mg after 7 days, then 3mg for 15 days then stop. If symptoms return during this process I should go for blood test and then call her for rapid appointment. Annoyingly we are head for the UK in 5 weeks...not ideal and I hope if I am symptomatic it comes sooner rather than later (and of course most of all I hope I don't have PMR).
I am dreading withdrawal and will just have to give in to it. We have guests arriving next week..I hope I can cope with them.
Poo!