Saw a new Rheumy and have to start again. - PMRGCAuk

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Saw a new Rheumy and have to start again.

IdasMum profile image
4 Replies

Have seen a new rhumatalogue this morning. Very thorough, did some X-rays, has ordered some more for later this week and wants me to be off steroids by the end of the month! Arghhhhhh

I can understand why...there has been no confirmed diagnosis and the only way is for me to reduce down to being symptomatic again (if I am) and then have blood tests.

I am currently on 12mg reducing to 9mg tomorrow. 6mg after 7 days, then 3mg for 15 days then stop. If symptoms return during this process I should go for blood test and then call her for rapid appointment. Annoyingly we are head for the UK in 5 weeks...not ideal and I hope if I am symptomatic it comes sooner rather than later (and of course most of all I hope I don't have PMR).

I am dreading withdrawal and will just have to give in to it. We have guests arriving next week..I hope I can cope with them.

Poo!

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IdasMum profile image
IdasMum
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4 Replies
HeronNS profile image
HeronNS

What bad timing. Hopefully things will shake out pretty quickly.

I love the picture on your profile page.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Oh dear IdasMum,

As you say, not ideal timing, but best you get things sorted sooner rather than later I suppose.

Withdrawal will be difficult, so I can only wish you the best - and a quick resolution to your problems.

PMRpro profile image
PMRproAmbassador

In that case I do hope you get symptoms pretty quickly so she can see it in all its glory. Only question - how long have you been on pred?

IdasMum profile image
IdasMum

Since end of May.

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