Yesterday I started reducing my preds from 30 mg to 25 mg. I was supposed to have reduced to 20 mg, but after reading all your helpful posts, thought it sounded a bit drastic and just didn't want the awful pain and stiffness back again. 20 again today and all seems to be ok for now, fingers crossed! Have been referred to a rheumy but have now had 2 letters saying that they can't book appointments at the moment because of problems with the on line booking service, but hope to see me within the 18 weeks guideline! Have had no blood tests for over a month, was hoping that the rheumy would take over from my GP, who though very kind, doesn't seem to know very much about PMR. Quite worrying when mismanagement could lead to having GCA by the sounds of it. Thank you everyone for your posts, I have felt very reassured reading them all, also very fortunate that I have not had some of the awful reactions to steroids that some of you have had and the ongoing pain that many of you suffer. Good luck everyone!
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