Can you help? Research into GCA

[Dev_Director]

Open Consultation with Doctors and Patients with Experience of Giant

Cell Arteritis British Society for Rheumatology and Royal College of

Ophthalmologists Giant Cell Arteritis Guidelines Group

The group are developing clinical practice guidelines for giant cell arteritis (GCA), to help doctors recommend the best treatments for their patients.

They would appreciate if you could spare a moment to complete their survey - for more information and links to the online surevery, please visit the pmrgca website -it's the first item in our 'Latest News'

[optimist-ok]

I'm happy to help but I can't find the survey. I have tried the website.

[Celtic PMRGCAuk volunteer in reply to optimist-ok]

optimist, hopefully this link will take you there!

pmrgca.co.uk/news/gca---res...

[optimist-ok in reply to Celtic]

Thank you Celtic, a quick reply! Unfortunately when I click on the link it comes up with an 'error' notice.

[Celtic PMRGCAuk volunteer in reply to optimist-ok]

How strange, optimist, as it opens up alright for me. Suzy has kindly come to the rescue so hopefully you will be luckier with her link.

[optimist-ok in reply to Celtic]

Many thanks Celtic & Suzy - it worked!

[raymck in reply to Celtic]

worked for me thanks celtic. raymck

[Suzym2u]

You could try this link docs.google.com/forms/d/1SM...

[jinasc]

Here is the whole caboodle.

The British Society for Rheumatology and Royal College of Ophthalmologists Giant Cell Arteritis Guidelines Group.

Open Consultation with Doctors and Patients with Experience of Giant Cell Arteritis

British Society for Rheumatology and Royal College of Ophthalmologists Giant Cell Arteritis Guidelines Group

We are developing clinical practice guidelines for giant cell arteritis (GCA), to help doctors recommend the best treatments for their patients. We would appreciate if you could spare a moment to complete our survey: docs.google.com/forms/d/1SM...

This survey is completely anonymous and you will not be identifiable from your answers unless you want to be. If you are willing to take part in future consultations along similar lines you can provide your email address in the form or alternatively send a separate email to: [e-mail]

[jinasc]

I found the survey difficult to understand, so I contacted the people who issued it and offered up this explanation of the survey. Mind I was not the only one as others have contacted me with the same problem.

They have agreed that this is exactly what they want us to think as we fill in the survey.

"Imagine you are a patient who has just been diagnosed with GCA.

Your medic now asks you a series of questions to see what is important to you in the treatment is s/he is going to give you.

So s/he asks you a series of questions and wants you to score them, depending on how you answer, will depend on the way forward.

S/he wants to know what is important to you and your answers can then enable them to choose the best was forward for you.

This is team work, medical and patient working together".

I do so hope you find the survey easier to understand, I can now go and fill it in with confidence. This survey is very important.