I was diagnosed with PMR five weeks ago after suffering symptoms for several weeks. Then diagnosed with GCA two weeks ago following a constant headache. I have been grateful for the prompt attention given to me - temporal artery biopsy, CT scan etc - and know I have been fortunate in this. However, although I thought I could cope with PMR and had already started to plan a healthy diet/lifestyle to try to offset the side effects of the steroids, the thought of the risk of blindness caused by GCA terrifies me.
I was initially on 20mgs for two weeks for PMR, then when this was reduced to 15mgs for the next week and the headache began and GCA was confirmed.
I now have to take 40mgs for four weeks (now in the second of those weeks), 30gms for two weeks, 20gms for two weeks and so on.
I feel worried having read the posts on this marvellous website that these reductions seem very steep and very rapid.
The hospital consultant worked out the timetable for me to be overseen by my GP. My only symptom for GCA was the headache - no visual problems - so was told that 40gsm would be adequate but I worry that such a quick reduction will make things worse.
Also, will four weeks on 40mgs be long enough to get things stabilised?
I would appreciate any views on this. I know I am probably worrying unecessarily, but you all seem to have such a wealth of knowledge through personal experience, I would query my instructions if I felt my worries had foundation.
This is a marvellous site and I have learned such a lot from it already. Thankyou.