I need emotional support on dealing with PMR and/... - PMRGCAuk

PMRGCAuk

20,291 members38,017 posts

I need emotional support on dealing with PMR and/or GCA from people with experience and knowledge of these illnesses. Agree/disagree?

Dev_Director profile imageDev_Director94 Voters

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5 Replies
Green_girl profile image
Green_girl

Theses people are more likely to be able to give you the practical support that the medics just don't have the time to give (though maybe many would like to give?).

jinasc profile image
jinasc

The reason for Support Groups existence is that Consultants and GPs only have limited time on offer.

We have found that Consultants have been very pleased to recommend their new patients to the local support groups.

Some Consultants even come to meetings at least once a year and encourage other medical people, ie Dieticians, Physiotherapists etc to come and give talks and advice.

The NHS cannot provide everything, we have to help our selves to gain knowledge to manage our

illnesses in conjunction with our medics. Knowledge is Power.

EdithWales profile image
EdithWales

It's really helpful to know about those who really understand. The encouragement is so important

grannma profile image
grannma

Every individual experiences different side effects from meds or the disorder. I want to learn all there is so I can relate/accept the side effects, etc.

jinasc profile image
jinasc

granma

you might like to visit pmrandgca.forumup.co.uk and under the thread Medication read Eileen's input.