Hi all, ive been having a dull pain in my chest/breast now since before xmas - my gp can feel what she thinks is muscoskeletal, i have lots o...
Help! Having a lupus flare and blood work showing nothing, has anyone else had this???
I've been flaring badly for the past 3 days & feeling dreadful. Had bloods this morning & consultant phoned to say nothing in my bloods indic...
I have numbness in my index finger and big toes. Is this common with APS? I have varying symptoms for APS,Lupus and test positive for RA
Although I have no joint pain symptoms. I have had a DVT and am on Warfarin....
Update and a big thank you!
Even better he knows a good deal about APS and is working with my Hematologist to make sure I'm getting proper care. but came back negative a...
Active B12 results are back ... now even more confused
Currently I am taking plaquenil for UCTD, I am coeliac and I take 100mcg of thyroxine for being hypothyroid. My GP agreed to my trying a subl...
Change of medication! Hi wanted to know some views about my meds.
I have lupus, I have gone up from 150mg to 175mg of azathioprine in the last week....
I am sorry to whine, but my body is not doing well. My legs and feet hurt. My arms, elbows, hands are really aching. And I am exhausted.
I was taking an nsaid also, but I retained water and also heard that mtx and nsaids don't mix well, so I stopped....
Oxfordshire based patients
He also assured me that my Lupus is not ' mild ' as described by original diagnosis....
I live in Australia. Anyone experiencing increased photosensitivity symptoms with their Lupus-sores from scratching itchy tingling skin?
I've been diagnosed with Lupus, Raynauds Syndrome since 2008 & Fybromyalgia since early 1990's....
Does anyone else have a sibling, or close family member, also effected by auto-immune disease?
I would really like her to get a second opinion from a lupus specialist, especially considering my medical history ( see my profile ) & that ...
bizarre and worrying symptoms ...can anyone shed light?
Hi, I am rather bothered about some strange symptoms I have been getting. I realise my health conditions make the situation more than a littl...
Worried about soft bones
I have APS for 14 years following PE, taking warfarin, statin and plaquenil for most of that time....
Plaquenil - when to take it
I am starting Plaquenil tomorrow and all it says is take two tablets daily. Call me a nong but I have a vague recollection the rheumy said ta...
New member introduction
I have recently been diagnosed with lupus and already have autoimmune hepatitis....
Yet another symptom to add to my long list
Hi all, as you know my diagnosis currently is UCTD. However, my wrists and fingers have been particularly painful and stiff for weeks now and...
February's Blog (Part 1) - Jenny's Journey to Diagnosis
The first of this month's blogs has been written by Jenny about her experiences in getting diagnosed with lupus. She doesn't know yet, but sh...
Active B12 private testing results
Hi all, I really appreciate your comments and feedback. I will post on the lupus site too as I have a number of AI conditions the symptoms of...
tired all time
hello this is my first post ever. my life changed literally overnight when I woke up 4 months ago and could not move....
St T's appointment brought forward.
I was referred to St T's by my rheumy up here. It was supposed to be a one off....
Anyone else with SLE related pelvic girdle synovitis of sacrum & hip joints responding to mycophenolate?
I'm globally hypermobile with polyarthralgia & SLE related synovitis diagnosed in several joints, including the highest cervical joints, & th...
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