When will it ever get better?
I've been in so much pain and having horrible fatigue for months, it just seems to not get any better. I'm still on the never ending rounds o...
Despair and sadness
I was diagnosed with both APS and Lupus almost two years ago, after my first bilateral pulmonaire embolism ( PE ) in May 2014. I can't tell y...
Is extreme fatigue a side effect of Plaquenil
Don't know whether its the RA itself or my body reacting to Plaquenil but I can't seem to do anything without being really really tired....
Hi, I have had 3 infusions of Remicade and my pain has gotten worse. I asked my rheumatologist and he said I need to give it more time....
Hydroxychloroquine and drowsiness
I started Hydroxy 250 mg twice a day ten days ago and it's made me so drowsy I'm having trouble keeping my eyes open and doing anything is ha...
Almost drug free and now pain free
just visited my Rheumatologist since my last visit in July he has reduced my Methotrexate and he now believes that by the end of the year tha...
Churg Strauss and Gastritus
Having been diagnosed with Churg Strauss syndrome over 4 years ago it seems to be under control with Methotrexate and Plaquenil....
Confused - ?RA with no signs of inflammation on hand sono
Is this normal with early RA, is this something else, or is it ' just in my head'?...
Diagnosed at 14 now turning 18
Hello my name is Karissa, I was diagnosed with Lupus at 14 years old with stage 4 S.L.E Lupus Nephritis also along with failing Lungs and an ...
Onward, but with your love.
Thank hou my dear ones on the Other Side of The Pond. Interstitial lung disease, AND shrinking lung disease, are causing me great pain....
Just diagnosed with severe lupus!What??? Yeah thats what my doctor said!At first he said borderline that took a quick 180 .Plaquenil 2 a day
He repeats a very severe case of lupus above the normal numbers but you are walking so we will see....
Hydroxy - Quinoric ?
I'm just starting on my fourth month of taking Hydroxy, and had few side effects to start with. Since starting the most recent prescription, ...
Pbc and ra
Hello😊 I have had Pbc since October 2014 and I also have ra . which has gotten to the point of me being disabled, my rheumatologist wanted t...
So fed up 😢😢
I have had lupus for several years , but diagnosed 2 years ago , I'm on 13 tablets a day due to having 2 heart attacks when I was 36 , have a...
Bicycling and numb feet
I was diagnosed with RA in March of this year. I am curious if anyone else who cycles has trouble with their feet going numb and what can be ...
Tired and sleepy!
Hi , I have RA since 1994, recent years a lot of surgery on wrists and feet....
Introduction and a query
I received an APS diagnosis early this morning. It caught me completely off guard....
Black area on toe & fingers, any thoughts?
I had a large blister on the side of my little toe, it healed eventually but left me with a very painful black area where it had been. At nig...
30 year lupus vet, just starts meds...
Since taking it ( and weaning off steroids at the same time ) My Lupus returns....
As plaquenil has already decreased her lung functions as she's only only 57 % now we are trying to stall methotrexate right now Any advise wo...
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