Posts - PKD Charity for Autosomal Dominant PKD | HealthUnlocked

PKD Charity for Autosomal Dominant PKD

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Fatigue on Tolvaptan

Hello all, I've started taking Tolvaptan (45/15) and I'm experiencing extreme...
aab2489 profile image

Interesting transplant discussion tomorrow night

Sharing that I am hosting what I hope will be a great Zoom discussion tomorrow J...

What is the normal kidney volume(TKV) ? How can we know the ADPKD progression using kidney volume?

What would be the normal kidney volume in [cc]? How can we know the progression ...
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Ketocitra

Has anyone tried ketocitra one drug with BHB that the company is making large cl...

3 year old daughter with PKD

Hi everyone, I've just posted this on the Kidney disease page too so apologies i...
BP135 profile image

Increase in creatinine at the beginning of the use of tolvaptan ?

Hi, I'm Piotr from Poland. Please write how your blood creatinine increased aft...
gorczes profile image

Tolvaptan

Hi everyone. Recently been diagnosed with ADPKD. Just wondering if Tolvaptan i...
Seur profile image

New here curios and confused lol

Hi my name is Rick I was diagnosed with adpkd on 5th jan 2022 I have never had a...
Chappy1708 profile image

New person alert!

Hello. I’m new here. Just thought I would introduce myself. I have a daughter wh...
Pinkskies123 profile image

New here!

Hello! I’m Naomi, 24 in London, diagnosed with PKD not long ago and trying to le...
heynaomiii profile image

Manuka Honey - PKD

I will be 73yrs in January and I was diagnosed with PKD earlier this year altho...
indie2012 profile image

Kidney Ultrasound

Hello all, God bless everyone on this sight. I just have a quick question. In la...
birddog923 profile image

Deroofing of cyst

Hi. I am 37 and diagnosed with ADPKD. Is there anyone here who got deroofing of...
Venu4584 profile image

Genetic test Renasight

Hello, I have a question. I’m 54 year old male about 2 years ago I had a routine...
birddog923 profile image

Gross hydronephrosis

I'm really sorry if I offend anyone by joining this community when I don't actua...
Braegorse profile image

Genetic testing in the UK

Hi. I'm recently diagnosed. Aplologies in advance for asking too many questions ...
neemic profile image

New ADPKD member saying hello...

Hi - I'm Mike. Pleased to meet you! Aged 60, born in Birmingham in the UK, now ...
neemic profile image

Update on family

Hi all, so now my kids have grown up and have been tested for PKD . 3 of the 4 h...

Follow up question on test

Hello everyone. Hope everyone is well. I have a follow up question. I had a kidn...

HAPPY NEW YEAR EVERYONE!!!

Its been a while since I've been on here, since I have been taking Jynarque I ha...

Need information please

Hello I’m new to all this. I’m 54 yo man. No known family members have pkd. In A...
birddog923 profile image

New to PKD

I was diagnosed with PKD in August 2020 following a CT scan after suffering week...
Lynx14 profile image

Gout pain

Hi Everyone Totally new on this page. I was just wondering if anyone stuffers ...
Nikki100 profile image

Hyperinflated lungs and PKD

Hey guys hope everyone is safe,now just a question about hyperinflated lungs do ...
Mela41 profile image

feeling useless

hello to every body .Feeling awful the last few months .as i have not being able...
Knees123 profile image

Drop in kidney function

Hello I have PKD and I’m 60 I was diagnosed at 16 but in general great healthy t...
tillymint16 profile image

BPH + PKD Effect on Creatinine

Can BPH lead to elevated creatinine in PKD patients? If so, is a procedure to ...

Creatinine Spike After Exercise

My blood test showed a spike in creatinine one hour after I played tennis. Anyo...
Rtennis profile image

New Kidney

Just recovering from getting new Kidney, at second call-in. Was EGFR 7 so was ...

Running and PKD

Is running bad for us? I have read that vigorous exercise can cause creatinine t...
Bee112 profile image
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