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PKD Charity for Autosomal Dominant PKD

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how will we no when it time i need a double transpant kidney &liver

ladyt62 profile image
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i have other medical probelm which r simular symtoms so how will i no when im at my worse i really dont want worse i sleep almost 24-7 dont eat much banging headache very weak lower bk is worse

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ladyt62 profile image
ladyt62
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You will be told so stop worrying. Your doctors should be monitoring blood results and you should be telling them about how you feel regularly. You will never get two kidneys transplanted. This is because you only need one to live a "normal" life. You may well be getting close to needing dialysis treatment. You be asked about transplantation by your doctors when they want to put you on the list and regularly talk about it when you are on the list to make sure it is still what you want and you are able to survive the operation.

ladyt62 profile image
ladyt62 in reply to

i no i wont get two kidneys one kidney one liver i went doc today after routine blood he said somethink about the blood going in kidney aint filtierng cleaning proper i have to go bk in a months time for more bloods

PKDUK profile image
PKDUK

I highly recommend you being very careful with high acidity foods. You can find a lot of information on the internet on high acid versus alkaline food. Acidity is an absolute enemy to those of us with this condition. When things get really bad (I should do it daily before sleep actually), I drink a glass of water with 2 spoons of sodium bicarbonate. It brings down acidity levels real fast and has been a life savior for me with both kidney and liver cysts.

I've tried medicines but I now stay away from them. All they do is conceal the problems and symptoms, making it worse, and add further burdens on the kidneys and liver. You will have a better affect with dietary changes and sodium bicarbonate.

A low acid diet (healthy vegan is necessary) is a must or it gets very uncomfortable, painful, the swelling gets out of control and the bp gets really high. Low acid (alkaline) diets will help to keep the swelling down and reduce the production of more cysts.

I'd also recommend you to stay away from consuming too many nuts or protein. I noticed that protein does really bad on me. I went on a nut-binge before Christmas, and believe me, my crap turned white (!) in color and I really thought it would be the last day for me. I past out several times and felt like I was dying. I was sooo sick! My kidney's and liver just couldn't process all the protein from the nuts.

I highly recommend Dr Robert Young's recommendations on low acid diets. There are several good videos on this you can view on YouTube, but he's the best! Researcher on the subject for many years.

If you change your dietary habits things will become much easier and you will win some time before you (may) decide on surgery.

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