Hi all, new here. Just wondering are you automatically referred to a specialist after discovering you have PKD? GP gave me the diagnosis from CT scan results and was very flippant when I was shocked. I've asked the receptionist if I've been referred on and she said she can't see a referral on my records. I appreciate everything is crazy at the moment but feel a referral should have been made? I have no idea where I am with regards to PKD, except both kidneys have many cysts and one has a large 10 -12 cm cyst. I am on 2 BP meds.
I'm sure I am experiencing symptoms such as abdominal 'fullness' or 'pressure' and seemingly constant reflux- again my GP said these are not due to PKD, but from my reading they could be?
Just a little lost at the moment.