Work question : I have pkd 25percent... - PKD Charity for A...

PKD Charity for Autosomal Dominant PKD

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Work question

Tiayaz1956 profile image

I have pkd 25percent kidney function how do I get a isolation note for work my boss is asking for one thanks

2 Replies


I don't think you can. I too have pkd.

My function is similar (was 24 last month) and planning has begun for a transplant.

I work for the NHS so am on the front line but I'm still working although in lower risk areas.

Take care and stay well.

Susan_101 profile image


The current UK guidelines for those who are required to shield cover only PKD patients who have had transplant. Or fail into the following categories:

People falling into this extremely vulnerable group include:

Solid organ transplant recipients.

People with specific cancers:

people with cancer who are undergoing active chemotherapy

people with lung cancer who are undergoing radical radiotherapy

people with cancers of the blood or bone marrow such as leukaemia, lymphoma or myeloma who are at any stage of treatment

people having immunotherapy or other continuing antibody treatments for cancer

people having other targeted cancer treatments which can affect the immune system, such as protein kinase inhibitors or PARP inhibitors

people who have had bone marrow or stem cell transplants in the last 6 months, or who are still taking immunosuppression drugs

People with severe respiratory conditions including all cystic fibrosis, severe asthma and severe COPD.

People with rare diseases and inborn errors of metabolism that significantly increase the risk of infections (such as SCID, homozygous sickle cell).

People on immunosuppression therapies sufficient to significantly increase risk of infection.

Women who are pregnant with significant heart disease, congenital or acquired.

Shielding is for your personal protection.

Please follow see the PKD Charity website also

It also offers those in the UK a lovely supportive closed Facebook group which you may wish to join

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