Ruptured cyst: Hi I have PKD and PLD. A... - PKD Charity for A...

PKD Charity for Autosomal Dominant PKD

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Ruptured cyst

tillymint16 profile image
5 Replies

Hi

I have PKD and PLD. A recent ultrasound showed up a cyst has been bleeding. I know it’s a common complaint but I’ve had no pain or indication this has occurred.

Otherwise good health with only raised BP kept in control. Brain aneurysms which too are monitored. No flank pain or discomfort, and wouldn’t know anything had happened. It is a common thing with this disease.

Has anyone else experienced this?

Thanks

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tillymint16 profile image
tillymint16
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5 Replies
Rick234 profile image
Rick234

Hello! To me every time I had a mri, it showed some cists bleeding, although I felt nothing. So, I need to guess this is a common issue, in general, depending on how much it bled.

tillymint16 profile image
tillymint16 in reply to Rick234

Thanks Rick

I guess it’s just another step in the Life of a PKD person. Got an appointment with Kidney consultant soon so se what he thinks.

Thanks for your reply

DeanSamson profile image
DeanSamson

Hi, this is extremely common. Usually paired with flank pain. I had a 5cm cyst burst and had pain for weeks which slowly got better. I was told as long as your kidneys are at a good function stage there's nothing to worry about is they will flush it away.

tillymint16 profile image
tillymint16 in reply to DeanSamson

Thanks Dean Samson

Many thanks for your reply. GFR is 56 so not mad kidney functions for an old gal of nearly 60!!!

Regards

Andrea

Susan_101 profile image
Susan_101ModeratorPKD Charity for Autosomal

Hello, it is common for many people to experience cyst bleeds. Some experience pain and others do not. Everyones PKD journey can vary. Please have a look at the UK based PKD Charity website pkdcharity.org.uk/about-adp...

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