Sue: I have 2large cyst on my right... - PKD Charity for A...

PKD Charity for Autosomal Dominant PKD

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Sue

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I have 2large cyst on my right kidney and one large cyst on my left. I’m in such discomfort. I have been swimming today and seemed to have twisted awkwardly. I don’t know if I should go to my doctor or let it settle. I swim regularly and this has not happened before. Recently my filtration has gone down to 39. I’m a little worried.

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Polyanthem
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Dont get obsessed by the size or number. Scans dont pick up all cysts due to limitations, cysts being any size inc microscopic plus many drs believe most of the trouble comes from the small cysts.

Dont get obsessed by cyst size. Drs believe the trouble comes from small ones and some are microscopic. Yes drs can pop cysts for you by op but for each done two immediately start growing therefore the benefit is shortlived. The only answer I can suggest is to talk to your gp about pain killers which is the only real thing that can be done.

Good luck

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