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Phlebotomy
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Rate of Decrease in RBC Count
RBC count was 1.2 million, but lowered by
phlebotomy
to 922,000. I have started on Hydroxyurea. Are there any resources that provide information on the rate I could expect my RBC count to go down? 100K/month, 50K/month, etc. Thanks! hsdale3
RBC count was 1.2 million, but lowered by
phlebotomy
to 922,000. I have started on Hydroxyurea. Are there any resources that provide information on the rate I could expect my RBC count to go down? 100K/month, 50K/month, etc. Thanks! hsdale3
hsdale3
in
MPN Voice
4 months ago
having ablation and INR has dropped
I won’t be drinking kefir this weekend after Googling result says could alter INR but don’t know if I should take another 0.5 extra dose and as it’s weekend can’t contact
phlebotomy
until Monday.
I won’t be drinking kefir this weekend after Googling result says could alter INR but don’t know if I should take another 0.5 extra dose and as it’s weekend can’t contact
phlebotomy
until Monday.
grandadbren1
in
AF Association
2 months ago
Dizzy/full head
I was diagnosed 12/20 started with
phlebotomy
only and then my choice with my Hemo/Onocoligist decided to go right on Besremi. I am having excellent results other than I still have a full dizziness feeling in the back of my head. It is most annoying and does impact my day.
I was diagnosed 12/20 started with
phlebotomy
only and then my choice with my Hemo/Onocoligist decided to go right on Besremi. I am having excellent results other than I still have a full dizziness feeling in the back of my head. It is most annoying and does impact my day.
josup26
in
MPN Voice
4 months ago
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Diagnosed 2015 complete CBC has changed
last
phlebotomy
was in June of 2023, since then my HCT is stuck @ 39, HGB is now @ 11.9, MCV,MCH,MCH are dropping each month, RBC is stable @ 5. My ferritin is now 7 with iron @ 21 and % sat @. 5. TIBC AND UIBC are elevated. Fecal test normal no blood.
last
phlebotomy
was in June of 2023, since then my HCT is stuck @ 39, HGB is now @ 11.9, MCV,MCH,MCH are dropping each month, RBC is stable @ 5. My ferritin is now 7 with iron @ 21 and % sat @. 5. TIBC AND UIBC are elevated. Fecal test normal no blood.
Pickleball11
in
MPN Voice
6 months ago
Post PV Myelofibrosis - One Year Update
I need a
phlebotomy
due to a high HCT! Perhaps others can understand that I find this comforting - to go back to results I experienced before this latest diagnosis. Anyway, I'm finding peace that my drop in counts was due to Besremi and not quickly progressing MF.
I need a
phlebotomy
due to a high HCT! Perhaps others can understand that I find this comforting - to go back to results I experienced before this latest diagnosis. Anyway, I'm finding peace that my drop in counts was due to Besremi and not quickly progressing MF.
marlenablue
in
MPN Voice
4 months ago
Laparoscopic Surgery and PV
A week after the surgery it was 44.9 but no
phlebotomy
was recommended. Two weeks after the surgery it was back down to 41.9. It all worked out!
A week after the surgery it was 44.9 but no
phlebotomy
was recommended. Two weeks after the surgery it was back down to 41.9. It all worked out!
Sheena2020
in
MPN Voice
5 months ago
PV treatment follow-Up
I explained that I am 57 year old male in excellent condition taking no medications except for 81 mg aspirin daily and going for
phlebotomy
every 3 to 4 months for PV JAK2 Axon 12. I am asymptomatic and feel great. Had genetic blood work almost 3 years ago that came back with a VAF of 5% .
I explained that I am 57 year old male in excellent condition taking no medications except for 81 mg aspirin daily and going for
phlebotomy
every 3 to 4 months for PV JAK2 Axon 12. I am asymptomatic and feel great. Had genetic blood work almost 3 years ago that came back with a VAF of 5% .
FlTodd
in
MPN Voice
4 months ago
Update 7.7
In the MPN news, it is time for either a Besremi dose increase or a
phlebotomy
. This is the conversation I am having with my MPN care team. [i]HCT on 11/13 = 45.3%. HGB = 14.8. To be expected with iron levels increasing.
In the MPN news, it is time for either a Besremi dose increase or a
phlebotomy
. This is the conversation I am having with my MPN care team. [i]HCT on 11/13 = 45.3%. HGB = 14.8. To be expected with iron levels increasing.
hunter5582
in
MPN Voice
4 months ago
HCT Jumped 3%.
I haven't had to have a
phlebotomy
for months and my HCT was hanging in at 45 or below. I switch from HU to Pegasus 2 1/2 months ago and all of a sudden my HCT jumped up 3%. It must be because of the very low dose I started with which was 45mcgs.
I haven't had to have a
phlebotomy
for months and my HCT was hanging in at 45 or below. I switch from HU to Pegasus 2 1/2 months ago and all of a sudden my HCT jumped up 3%. It must be because of the very low dose I started with which was 45mcgs.
russkatt
in
MPN Voice
7 months ago
Just diagnosed with 4.0 cm aneurysm of ascending aorta and severe calcification
I switched to Jakafi a few months ago and had one
phlebotomy
. I’m thinking it was August. The last two months my HCT has been 41 and 41.6, however my platelets continue to bounce between 700 and 800 and my white blood count between 14.8 and 15.
I switched to Jakafi a few months ago and had one
phlebotomy
. I’m thinking it was August. The last two months my HCT has been 41 and 41.6, however my platelets continue to bounce between 700 and 800 and my white blood count between 14.8 and 15.
Wewo01
in
MPN Voice
3 months ago
PCV besremi and low platelets
My last
phlebotomy
was in March (before was every 2-3 months) and since that my hematocrit has been in 40-44 range so controlled Up to June my platelet count was pretty stable around 300 however since then it has consistently dropped at each monthly check.
My last
phlebotomy
was in March (before was every 2-3 months) and since that my hematocrit has been in 40-44 range so controlled Up to June my platelet count was pretty stable around 300 however since then it has consistently dropped at each monthly check.
gjh8733
in
MPN Voice
4 months ago
Agios and Alnylam sign agreement for siRNA candidate
« We are pleased to license this programme from Alnylam, the leading RNAi therapeutics company, with the goal of delivering a convenient, disease-modifying treatment option that addresses the underlying pathophysiology of PV and reduces or eliminates the need for
phlebotomy
.
« We are pleased to license this programme from Alnylam, the leading RNAi therapeutics company, with the goal of delivering a convenient, disease-modifying treatment option that addresses the underlying pathophysiology of PV and reduces or eliminates the need for
phlebotomy
.
Manouche
in
MPN Voice
8 months ago
PV and loss of hair?
My treatment right now is daily aspirin and almost weekly a
phlebotomy
. I've got 12 in 3 months . The last one was early July. My hematocrit is 37% but I also have very low iron right now (which is the intention). Since a few months i lose a lot of hear. Does anyone recognize this?
My treatment right now is daily aspirin and almost weekly a
phlebotomy
. I've got 12 in 3 months . The last one was early July. My hematocrit is 37% but I also have very low iron right now (which is the intention). Since a few months i lose a lot of hear. Does anyone recognize this?
AnPV
in
MPN Voice
7 months ago
new mutations
Had been taking aspirin and monthly
phlebotomy
until 3 months ago when started hydroxyurea. My BMB now showed a new mutation IDH1 and allele burden increased from 24% to 52%. Didn’t need a
phlebotomy
this month but will be starting Besremi mid d June. Anyone else have this mutation?
Had been taking aspirin and monthly
phlebotomy
until 3 months ago when started hydroxyurea. My BMB now showed a new mutation IDH1 and allele burden increased from 24% to 52%. Didn’t need a
phlebotomy
this month but will be starting Besremi mid d June. Anyone else have this mutation?
Teachme85
in
MPN Voice
10 months ago
Update 7.9.5
Do a therapeutic
phlebotomy
if the leukocytes are looking to low to risk a dose increase. Either plan is Ok with both docs, so I will decide which option to use in collaboration with my docs if the occasion arises.
Do a therapeutic
phlebotomy
if the leukocytes are looking to low to risk a dose increase. Either plan is Ok with both docs, so I will decide which option to use in collaboration with my docs if the occasion arises.
hunter5582
in
MPN Voice
1 month ago
Iron Deficiency
I’ve read on the internet that almost everyone with PV is iron deficient at time of diagnosis (hence the low ferritin) and that
phlebotomy
makes the iron deficiency worse. My heam told me I was iron deficient before even starting treatment. Is that true?
I’ve read on the internet that almost everyone with PV is iron deficient at time of diagnosis (hence the low ferritin) and that
phlebotomy
makes the iron deficiency worse. My heam told me I was iron deficient before even starting treatment. Is that true?
Hereforalongtime
in
MPN Voice
8 months ago
New to MPN Voice
At that time I was getting a
phlebotomy
about every 2.5 months to keep HCT below 45. Like others have said on this board, it seems the evidence is strong to keep HCT strictly below 45. My WBC had climbed to close to 12 as well at that time.
At that time I was getting a
phlebotomy
about every 2.5 months to keep HCT below 45. Like others have said on this board, it seems the evidence is strong to keep HCT strictly below 45. My WBC had climbed to close to 12 as well at that time.
Luthorville
in
MPN Voice
1 month ago
Besremi Update 15 Months
I assumed I'd need a
phlebotomy
as I hadn't had a CBC for 7 weeks and my Hematocrit was already 40 but it went down 2 points! Almost never happens without
phlebotomy
. Everything dropped with the increased dose.
I assumed I'd need a
phlebotomy
as I hadn't had a CBC for 7 weeks and my Hematocrit was already 40 but it went down 2 points! Almost never happens without
phlebotomy
. Everything dropped with the increased dose.
Elizka
in
MPN Voice
10 months ago
Hormones?
I really think this is a side effect of Besremi and the
phlebotomy
combo. It is just becoming more annoying than anything. Just thought I would ask if anyone else out there has any input. Thanks!
I really think this is a side effect of Besremi and the
phlebotomy
combo. It is just becoming more annoying than anything. Just thought I would ask if anyone else out there has any input. Thanks!
KLCTJC
in
MPN Voice
9 months ago
Potential adverse effects of long-term venesection used to treat PV.
While
phlebotomy
can effectively manage the condition, there are some potential effects of long-term
phlebotomy
to be aware of: Iron deficiency: Frequent
phlebotomy
can lead to iron deficiency over time.
While
phlebotomy
can effectively manage the condition, there are some potential effects of long-term
phlebotomy
to be aware of: Iron deficiency: Frequent
phlebotomy
can lead to iron deficiency over time.
hunter5582
in
MPN Voice
10 months ago
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