I came to the Centre last week for the Living Well course. It was great. We are very fortunate.
The histology has now confirmed that I have a retro-peritoneal lipo-sarcoma which is not operable and I am due to start on doxorubicin on Monday.
Things are moving fast and I think thats best but I also want to do what I can to do to maximise my well being.
I've read the info about the drug, and am putting into practice the meditation etc so that I am as receptive as I can be. But if there are any specific tips, pls feel free to share. Eg I've heard the ice skull cap doesnt really work with doxorubicin - is it worth trying>
Also if anyone has a retro-peritoneal lipo-sarcoma and has looked into/personal experience of non surgical options including
1) Combination with olaratumab or going more quickly to stronger chemo eg trabectidin or eribulin)
2) high dose proton therapy (https://www.oncolink.org/conferences/coverage/ptcog/oncolink-at-ptcog-2012/reporting-from-ptcog-2012/high-dose-proton-therapy-for-soft-tissue-sarcoma-of-trunk-type-of-session-scientific-session)
3) Turmeric / curcumin
4) Aloe Arborescens
if you want to know what i find out on any of the above, let me know - I am happy to share.
Hugs to all