I've just joined this group today, but feel a bit of a fraud because I was diagnosed with DCIS rather than an invasive cancer. I know I'm very lucky that this thing was confined to my milk duct.
Has anybody had any experience of DCIS? I'd never heard of it until I was diagnosed with it. I've seen slightly differing information about it online. I gather it is regarded (luckily) as Stage 0, hence my unease for bothering you folks.
I'm still recovering from a lumpectomy back in April. I have large boobs and was massively bruised and swollen - the WHOLE breast was aubergine colour for a month and really misshapen! Very painful too
2 weeks ago I started bleeding from the surgical incision. It was determined to be old blood from the operation. A week ago I was literally spurting blood everywhere via the same exit wound, which had me being rushed back up to hospital to a post-op unit for assessment.
They diagnosed a massive infection and put a drain on the breast, and prescribed powerful antibiotics which I'm still taking. Have been under the care of district nurses. Things have improved greatly, although the nausea has yet to pass.
I've suddenly felt energised this past day or two (a miracle, because I also have fibromyalgia and rheumatoid arthritis!) and so have been catching up on much-neglected jobs around the house and garden. I hadn't realised just how poorly I'd been feeling until a couple of days ago when it suddenly dissipated. Always the way, eh?
I've now been referred back to the surgical unit for them check all is ok, before they speak again to the Oncology Dept about radiotherapy (the mass they removed was high grade). I've been told this infection will probably delay things with Oncology. From all I've read, it is likely I'll have radiotherapy as a preventative measure.
My surgeon elected to do the lumpectomy rather than a breast reduction, due to my health, but I must admit to regretting this course of action, given what's happened this past fortnight. Recurrence appears to be about 25% which is usually an aggressive form. My surgeon could have reduced that likelihood by about 50% if he'd gone the other route!
I just wondered what anybody else's experience of DCIS has been and how their treatment has been approached. Any useful information gleaned from medical appointments rather than the internet?
Thanks for listening. Sorry to trouble you.