I think i have endometriosis - Pelvic Pain Suppo...

Pelvic Pain Support Network

19,349 members5,635 posts

I think i have endometriosis

downhills30 profile image
7 Replies

So I think i have Endometriosis, since my middle child i have had bad abdominal cramps that felt like contractions at time way worse than others, that was four years ago. I have spoke to doctors oh it sounds like IBS stay away from fatty foods, I still get it they run blood and all they can say is my Iron is really low, I take two iron pills a day now with multi and just now got my iron under control, so what happens an attack hits me again and bad!!! So go to my OB she does blood and pap and sends me to ultrasound, a week later still can eat can't sleep pain is killing me!! so i go to my internal doctor and they send my urine to lab and give me something for nausea. I get urine test back, she said it is fine but am I on birth control, i reply no, not asking why!!! hang up. so get pap back it's within normal limits, get blood back its ok, called today saying my uterus is extremely thickened to get on birth control and in one month see if I am better!! so typed all my symptoms in and Endometriosis is the only one that fits....what to do pain is everyday!!

Written by
downhills30 profile image
downhills30
To view profiles and participate in discussions please or .
Read more about...
7 Replies
charlie83 profile image
charlie83

Hi there

So sorry to hear you're going through this, i know from experience that the pain is unbearable. You really need to get referred to a gynaecologist through your gp, or privately if that's an option.

Many gps say it's ibs and that could well be an element to the pain as the organs involved are all in the same area, but it's hard to tell without more investigations

Do the contractions come on at a particular time during your cycle? and can you make any connections to the pain and foods or drinks you're eating?

i think keeping a diary of your symptoms can help both you and the doctor in looking at what is going on

They might think you have a UTi, as that can make you feel terrible too, but that would show on your urine tests

Unfortunately as women we need to push the docs to help us, but please don't give up , you shouldn't be suffering like this

Let me know how you're doing,feel free to PM me if you like

C

x

downhills30 profile image
downhills30 in reply to charlie83

no uti they checked for that my blood is good except iron it's always bad!! they put me on birth control and i have just took over my health, if my uterus is thickened and i fit all the symptoms of endomertriosis i will and there treating it as it, just don't want to call it that then i will take over, this is my health, still in pain but only been on the endo diet for two weeks and bc also so we'll see!!! thanks and god bless

feisty-girl profile image
feisty-girl

Hi downhill, so sorry you are going through all this don, t give up find anotherdoctor or specialist it took 4 years for mysrlf to get diagnosed had to move to another area and in five minutes of being seen was diagnosed, so don, t loose heart write every symptom in a diary from foods to pain and bowel movements. Good luck

downhills30 profile image
downhills30 in reply to feisty-girl

and it was endo? they said everything looks great, I do have a cyst that has blood or protin in it that keeps coming back but I feel that pain, it is different, they have totally cleared me in the OB area since then, I have had my gallbladder out wasn't it, sent me to gastro doctor who's went up and down all they see is IBS, inflammation and a little reflux, went back to internal doctor who I love and she found vitamin d was low, so take 50,000 units a week, and that could be the pain along with IBS. So while in visit had one of my dizzy spells they checked my BP and pulse and my heart rate was 125, sent me home with halter and it came back bad so will be seeing a heart doctor soon so I pray after 2 yrs may finally be getting somewhere thanks.

PPSN_JudyB profile image
PPSN_JudyBPelvic Pain Support Netwo in reply to downhills30

Just wondering how you got on with this and how you are ?

kath1000 profile image
kath1000

I was in the same boat and it turned out to be endometriosis. Did you have a c section? When I had a c section endometriosis got trapped in the scar and bled every month like a period but had no where to leave and formed a very painful lump. Are the Dr's giving you pain meds? I hope so. Don't give up until you have an answer. Hang in there.

Myhrmade profile image
Myhrmade

HI, I empathize and I have not found great success but a G.D.S.E. Gynecologist is supposed to have further training in endometriosis. The anti-flammatory I get, ibuprofen related - Ibux in Norway reduces pain as well as arnica, Epsom salt in hot baths. I have gone so far as the laproscopy which didn't 'show' results for allowing me a hysterectomy years ago, try your best to research endometriosis specialists in your area. You can get a prescription for reducing your blood flow from every gynecologist . The 'pill' only heightened my hormones unfortunately. I am trying again for a hysterectomy, and I am 5 months in continuous chronic endo with no pre-operation tests yet. My next appointment is with a gynecologist in the hospital in 5 weeks but I have little faith that an MRI will help speed up the likelihood of an operation any time soon. I feel your frustration and pain, it is not easy to find the resources you need. The biggest light in the dark I have heard of is UCH hospital in Nantes France being able to assess pelvic pain / effects of endo within a multi-disciplined diagnosis. I wish you the best of luck

You may also like...

Diagnosis of vulvadynia but think I have trapped nerve..

my symptoms, i.e. no pain during the night, starting about an hour after getting up, worse with...

Re: I think I might have Pudendal Nerve Entrapment, Can anyone please advise?

After 32 mths of debilitating pain in lower back/right groin/pubic area I have developed difficulty...

Think I have pudendal neuralgia. Ways to exercise with pelvic pain?

antidepressant for the pain (I cant remember the name of the medication). I really don't think my...

pelvic pain & bleeding>> with endometriosis, i cant take much more >.<

this pain is sharp feeling deep in the sides and in side my pelvis and i always would get back pain...

I have all symptoms for Endometriosis, yet MRI has come back clear could it be anything else?

at work due to the pain. I had a MRI 18 days ago and results have come back saying \\"no convincing...