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leg weakness with prolapse

01269JJ profile image
18 Replies

Hi.

I have been suffering from incontinence back pain, weak legs, very painful to have sex for years at least 12 if not more. I was always very fit. I have two sons who I played squash with swam 100 lengths of our local pool every morning before going to work in my full time job where I lifted heavy tray and was on my feet all day. I’d go home and if I wasn’t down the gym or playing squash with my son. I be in my garden which I loved. It seamed suddenly I was struggling to get out of the pool my legs were so weak. My lower back very painful. I went to doctors who sent me for back mri scan which showed nothing but a little wear and tier. I felt that people thought and still think I’m not for real as one day I’m walking like a woman of 96 then the next Im pain free which isn’t often now and I’m very careful not to do to much because I know I’ll suffer for it. . Then a few month ago I found that when I went to open my bowels I felt as if it was try to come out of my vagina. So I plucked up courage and went to see my doctor again. who said I had a prolapse and has referred me to gynaecology which I’m waiting for. After reading about a prolapse on Google I was so shocked that I have been treated for all my problems separately. Hormone treatment for my painful time having sex with my poor husband who been so patient and caring. Tables because I wee myself every day. Painkiller for my painful back. I feel so upset because I believe I’ve had this prolapse for years and no doctor made the connection and treated all my problem separate. Dew to my problems I went part time and light duty’s at work I was 45 then had to finished work at 52yrs I couldnt walk in the mornings even after good nights sleep. I stop the gym I still swim a little but struggle getting out of pool. I feel so depressed I often feel very down and doom and gloom. On one American sight I read that leg weakness is all part of the prolapse so I wondered is there anyone out there that can’t relate to my experience. Is there anyone who can tell me there is light at the end of my tunnel. I’m I ever going to be able to run around with my grand children. Spend the day doing gardening with out having to spend the next 3 days resting. 😢and feeling sorry for myself.

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01269JJ profile image
01269JJ
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18 Replies
Lurcher-lady profile image
Lurcher-lady

hi your story sounds very similar to mine. Long story short I was fitted with a pessary which has helped no end. Your gp can fit you with one of these so you don’t have to put up with your condition whilst waiting to see gynae. Good luck 🤞🏻

MOLLYMILO007 profile image
MOLLYMILO007

Hi there I'm so sorry its horrid isn't it...are u menopausal as to me sounds like all the symptoms as u loose estrogen and that contributes to pelvic floor weakness...I would ask to go on hrt straight away and also buy a kegal 8 pelvic floor exerciser ..I managed a prolapse for 10 yrs woth hrt a kegal 8 and vit d and collegan ..had to secure to a operation 2 yrs ago as had to come off hrt I'm 63...honest that was a life saver for me but I know we all have our concerns re that but to me using everel conti patches were a lifesaver..I know u are in the u.s so not as easy as uk..but pls speak to your gynie...lots of luck...also after the op I'm like a new woman so well worth the money and 3 months of taking it easy....jeanette x

Mrshappyme profile image
Mrshappyme in reply to MOLLYMILO007

could ask what collegen do you use? i take vitimand3. i cant take hrt as i had beast cancer in 2014 and been clear 9 yrs now. iv got gall stones so im waiting on seeing a consultent with them hopefully i will see i dont realy want my gallbladder out but i might have too but it will be harder to breack down the fat in foods .but i was woundering what collegen you use? many thanks im a young 63ys

MOLLYMILO007 profile image
MOLLYMILO007 in reply to Mrshappyme

Hi I use the collegan from kegal 8 if u go on their website you will see them x

01269JJ profile image
01269JJ in reply to MOLLYMILO007

👍

Mrshappyme profile image
Mrshappyme in reply to MOLLYMILO007

sorry what web site is that ?

MOLLYMILO007 profile image
MOLLYMILO007 in reply to Mrshappyme

Kegal 8 website but u can buy collegan anywhere x

Mrshappyme profile image
Mrshappyme in reply to MOLLYMILO007

thankyou

RiceandChips profile image
RiceandChips in reply to MOLLYMILO007

hi, can you tell me which operation you had? I have been offered one of 3 ops and told to choose, I don’t know which is best but really scared even though I know I should have it done x

HashtagNell profile image
HashtagNell

I see you're in the UK, like me. First, empathy. Second, don't give up. I don't think there is any magical fix but there are better (and worse) ways to manage the condition.

If you can, join the FaceBook group FPOPS UK (Female Pelvic Organ Prolapse Support, UK). It is enormously helpful, and includes some printed resources.

I have found natural sponges (rather than prescribed pessary, which I also tried) comfortable and helpful and relatively inexpensive, and the NHS App Squeezy also really useful for doing the exercises regularly (I scoffed at it at first but it has really helped).

But it's also wonderful knowing, both here and in the FB group, that you're not alone. Take your time reading all about the different things people try, so you can work out what might be right for you, both now and in the future. Each body is different, but all the symptoms you describe will be familiar to people here. 😘

01269JJ profile image
01269JJ in reply to HashtagNell

thank u for taking the time to read and reply everyone. Just wondering if there’s a clinic in west or south wales I can go to for information on peasants and sponges my doctor hasn’t told me nothing on referred me. Phone my hospital and they have told me that I’ll only have to wait 4/6 weeks to be seen. Just would be nice to chat with someone in the know on things that can help.

HashtagNell profile image
HashtagNell in reply to 01269JJ

You mean pessaries, I think, rather than peasants. It's the autocorrect! I am in Scotland, not Wales, so can't help re. local clinics, but suggest you try the FPOPS FaceBook group, where there may be someone in the same area as you. Generally the medics don't counsel on sponges, but people here do. They are a natural alternative to the medical inserts, and some women also use them for menstruation. So trawl the information online here and in the FaceBook group. You don't have to wait to see a doctor to try them, and they are only a possible part of what you will need, I suspect. puresponges.co.uk/prolapse-...

01269JJ profile image
01269JJ in reply to HashtagNell

thank you so much I will do.

Mrshappyme profile image
Mrshappyme

hi i feel for you iv been going trough the same for the since 2019 then had a interior bladder repair in september last year now i think my blader as prolasped again my legs feel weak and achey and urine infections all the time so im waiting to see my gyno as doctor as refered me back to her . i never had urine infections untill my prolapse . it is best to ask your gyno for a pressy ring to help the heavy feeling all the best let me know how you get onx

01269JJ profile image
01269JJ in reply to Mrshappyme

thanks just hearing you say ache weak legs helps me. I know it’s not all in my head.

MissStar profile image
MissStar

Check out wholewoman.com - a non-surgery approach which helps women live very well with prolapse, even severe. The approach works on breath and posture, helping organs move into their natural position, helping hip and joint problems too. Might be just what you are looking for. I hope you find healing and strength.

01269JJ profile image
01269JJ in reply to MissStar

👍

MOLLYMILO007 profile image
MOLLYMILO007

I'm so sorry that u have suffered like this aching legs etc can be wear n tear on your joints are u menopausal.as u haven't mentioned this I'm 64 fit young and past my menopause but I went on hrt as lack of estrogen can do many things so I'm supeized no one mentioned this ..hrt was fantastic for me I was on it for 12 years I had a bladder prolapse so I felt like a bulge in my vagina very scary wen u don't know what the hell it is ..I took hrt I took everel conti patches and bought a kegal 8 to tighten my vagina Google kegal 8 they are brilliant also I took vit d and collegan everyday..maybe ask your gynie I had a prolapse repair 2 years ago I went private as at 62 I had never had a op since having the kids so was nervous buy best thing I did...I'm.not on hrt now as I came off it due to age etc but I'm.ok ..u sound super fit heck I only wish I could he half that active but not very sporty ha ha ..my inbox is always open hope this helps ...jeanette xx

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