Cluneal nerve entrapment? Sacrum/buttock pain

[Westie08]

Hi,

Is there anyone who suffers with nerve pain over the sacrum and top of buttocks? I’ve searched a few posts and believe it to be Cluneal nerve entrapment possibly.

There is such an agonising ache over my sacrum and SI area and goes into top of my buttocks. It was pins and needles and felt burning stabbing pain.

I’ve been put on pregablin low dose which has took away some pain and pins and needles. But I can still feel pain and sometimes it gets worse.

If I sit and lean on my top of my bum it will go numb very quickly.

Thanks

[Blue245]

Hi

Sounds Like I have something similar. Can I ask how it was diagnosed?

[Westie08 in reply to Blue245]

It hasn’t been diagnosed. That’s why I was asking in here if anyone has similiar symptoms to me.

I’ve always had pain and a problem with my right SI. But this nerve pain over my sacrum and buttocks is a new issue and I can’t work out why or what’s happened

[Blue245 in reply to Westie08]

Hi

I see I've had the same pain had an MRI which shows some signalling from t12 to l1.

I'm currently trying to find oesteopaths in my area when they reopen.

The pain is awful and I can't lean back or lie on my right side.

I use ice regularly and prayer stretches plus naproxen and amitriptyline to sleep at night.

[Westie08 in reply to Blue245]

Oh good that you’ve had an MRI and it’s shown up something. Yes it’s very difficult for me to lie on my back as e skin is like hypersensitive. Are you the same?

If it’s over your sacrum top of buttocks etc the same and just very lower back. If there saying on MRI they can see signalling from T12 to L1. Have you heard of maignes syndrome? Also known as thoracular lumbar syndrome?

That’s can create all of our systems and it’s a problems with the nerves further up the back actually. Google it. I wonder if mine could be that but yes osteo or good chiro may be able to sort it or make it better for you. But yes during this pandemic very difficult. I can’t get to anyone either.

Have the medics told you what they think is going on then?

[Blue245 in reply to Westie08]

I think we are definitely with the same symptoms, I did see a physio pre lock down via nhs who said it's neve related but never mentioned which nerves or maignes syndrome which I think it probably is.

The exercises he gave bringing knees to chest haven't helped and hurt due to sensitivity on the one side just on the rim if the iliac Crest and buttock pain.

I'm thinking nerve block for a possible remedy but it sounds scary.

I'm going to speak to my dr again.

Just to make you aware my MRI came back normal it's only when I paid £150 to get a second opinion did the report show these findings.

You have to be so careful not to get pushed aside these days.

Pain is unpleasant and there has to be a reason.

It would be good to know about Nerve blockers.

[Westie08 in reply to Blue245]

Oh wow who did you pay to get a second opinion? That’s interesting isn’t it.

Yes nerve blocks only temporary though aren’t they. I don’t think they last very long but it determines the source of what nerve is causing the pain at least.

[Blue245 in reply to Westie08]

w27imaging.co.uk/second-opi...

The report was so thorough. Very much worth it

It's hard in lock down I'm about to call my drs with the new report and go from there.

Hopefully the lock down will start reasing up soon.

X

[Westie08 in reply to Blue245]

How did you get the MRI images to them?did you have to obtain them through the hospital?

Yes admit this lock down just makes everything harder. An there will be lots of ppl in our position and a rush for treatment!

[Blue245 in reply to Westie08]

I got a private MRI to start with.

Then you send the copies via a secure log in which the company sends you.

[Westie08 in reply to Blue245]

Ah okay that makes sense. Keep me updated with how you get on or if anything works.

It’s puzzling to fix. I’m only at the start of this journey so have a long way to go!

[Blue245 in reply to Westie08]

I know just the start... keep me posted as well x

[susieqblue in reply to Blue245]

Im getting 6 nerve blocks and I am on number 3 because of the shutdown I skipped a month with no injections. I am also have endo surgery and hysterectomy tomorrow.

[susieqblue in reply to Blue245]

That pain is horrible and I have it also.

[susieqblue in reply to Westie08]

I have buttocks and groin pain right side. Scheduled for endo surgery and hysterectomy tomorrow. and a pudendal nerve block I have had 2 blocks and scheduled for 4 more

[susieqblue]

I have it 2 nerves cluneal, sacrum nerve entrapment. I am on 3 of 6 nerve blocks and also have endo surgery and a hysterectomy tomorrow. Its horrible pain. I have pn also. Mine affects my buttocks and my right side groin pain. Also pain goes up and down front and rear of my sciatic nerve. Pain meds only take the edge off. I take lyrica and oxycodone and some days I just wanna cry because I am sick of the pain it causes.

[Westie08 in reply to susieqblue]

Very sorry to hear that. What two nerve blocks have you had so far? Have they helped?

Have they said how long they will last?

[susieqblue in reply to Westie08]

they released the nerve. endo all over it, nerve blocks I get 3 more friday get 1!

he did a hysterectomy complete

[AuntieH in reply to susieqblue]

If you're in the US who released your nerves?

[susieqblue in reply to AuntieH]

womenssurgerycentertn.com/www Dr Furr, Chattanooga, Tenn

[AuntieH in reply to susieqblue]

Thank you!