Hi guys this is my first official post

[Korrina]

My name is Korrina and after way too long I was finally diagnosed with stomach adhesions. Hoping to get some help in understanding the condition more and feel like I have help

[Afrohair]

Hi Korrina sorry you are in pain have you tried massaging the area regularly or accupunture I hear these are great for adhesions and also cutting out gluten if you have tummy troubles

[Korrina in reply to Afrohair]

I tried massage it hurt more

[Afrohair in reply to Korrina]

Im so sorry I think it gets worse before it gets better are you seeing a physiotherapist at the minute to help with managing the pain x

[Aisha12 in reply to Afrohair]

I found the massages quite painful initially, but it eased my pain overall so much. Eventually the massages stopped being painful. It’s pressing down on adhesions which is why it’s so painful, but hopefully it’ll help break them down

[Korrina in reply to Aisha12]

I try them again

[Aisha12 in reply to Korrina]

hope you find some relief soon. I’ve suffered from awful pain because of adhesions, even in pregnancy the pain has been excruciating because of the ligaments stretching and pulling on adhesions. I’m stuck to a hot water bottle all the time, but before pregnancy the massages definitely helped x

[Korrina in reply to Aisha12]

Thanks Aisha il give it a try

[Skye22]

Wanted to know what has caused your adhesions and do you have a treatment plan?

After 13 surgeries I have adhesions on Bowel, bladder, pelvic and Abdominal areas.. Adhesions causing bladder incontinence, Bowel dysfunction, pelvic and Abdominal pain and restricted movement around Abdominal area.

Pain is awful feeling like you are being pulled apart internally with extreme spasms. I take antispasmodic medication and tramadol for pain relief.

I have had several surgeries to separate adhesions but that only causes more adhesions. I have been advised by consultant that further surgery Is ruled out now due to high risk of complications.

GOOD NEWS is that

My saviour is my specialist physio who I see every 2wks and performs Abdominal acupuncture and Abdominal Visceral massage. It is very painful and is not a cure more a case of pain management. After treatment I feel Abdominal area a bit more relaxed although it is short lasting, a week of reduced symptoms is worth it!!!!

Physio also treats pelvic pain with internal/external trigger point manipulation it also reduces painful spasms but again short lasting.

For me getting the right balance of meds and physio does help to an extent, also being realistic of outcomes.

I have a great health care team and have good family support, I make sure on my good days I celebrate with mabe lunch out with friends or retail therapy!!

Wishing you good health and hope you find treatment that is best for you.

A note to say these symptoms developed over many years and in my case are severe. (apologies for the long post). 😊

[Korrina in reply to Skye22]

I was 18 I went in for key hole surgery and they hid everything. I found out when I was during they left a student alone and he screwed up. I have a feeling there's more though because they offered me 180,000 grand as long as I didn't resue or tell the media. Why would they do that unless they knew I'd be in this pain. I now know he'll because of what those bastards did to me and I hate them and my so called mother for leaving me in this way

[Korrina in reply to Korrina]

I am sorry to hear of your situation too

[Afrohair in reply to Korrina]

Do you know what the surgery was for do you have endometriosis or another condition?did you get compensated so sorry you had surgery against your wish x

[Korrina in reply to Afrohair]

They suspected endometriosis and they said it was a simple op. They never said anything else I had the surgery and they screwed it up. Best part is my monthly a are still bad on top of normal pain. They gave me 180,000 which my mom spent most of on herself. Apparently she went through more. I just wish I could turn back the clock

[Skye22 in reply to Korrina]

Now is the time for you and getting the help you deserve. I am so sorry you have had to deal with all of this.

[Korrina in reply to Skye22]

Every day is hard. A Dr told me to stop buteq patches cus they cause constipation but my GP said to stay on them until July and take laxatives with it to stop it. Its cusnin July I have an appointment to see a Dr at the hospital and hopefully get some help

[daphnedaphne]

Hi Korrina. Have you seen a good pelvic floor Physio? Some of them are very good with visceral issues and have good contacts/are aware of the Drs/specialists who have a niche for particular issues. Good luck

[Korrina]

No I'm waiting on gi to see what he has to say

[willemine]

Are the extensions from endometriosis ? . I had them too and they removed them but surgery failed and now i can t sit anymore only on my knees on a yoga bench

[Korrina]

No they are from checking for endometriosis they screwed it up and left me half a person

[Konagirl60]

I’m sorry you suffered this after a laparoscopy! It’s negligence. Were you told to only shower for two weeks post op? Did you avoid lifting heavy things for three months while you healed?

I’ve found that Buscopan helps the spasms. It calms the smooth muscle in your digestive tract. Have you tried that yet?

A natural calming method might be taking magnesium bisglycinate twice a day as it calms muscle pain and spasms.

There is a product called Wobezym that breaks down scar tissue. It might help.

Your Mom was selfish to spend money that was given to you due to your post op injury. That’s a lot of money!

[Renee2 in reply to Konagirl60]

I found that Buscopan and Magnesium helps me too.

[Konagirl60 in reply to Renee2]

What are you dealing with?

I’m glad Buscopan and magnesium help you.

[Renee2 in reply to Konagirl60]

I have endometriosis, had surgery done and now on Decapepty. Still have some flare ups and learned that Buscopan and magnesium helps with pain caused by cramps/spasms. Doesn’t help with the pain in my abdomen and lower back. How about you?

[Konagirl60 in reply to Renee2]

I had a rectal nerve in my ischial spine stretched by a migrated titanium metal Filshie clip. The rear section of my right pudendal nerve became stuck on fascia and pinched between juxtaposed overused ligaments every time I sat or lay down.

It burned and I felt electrocuted. I wasn’t believed by all the doctors I saw and they dismissed me. I had no voice.

I was misdiagnosed with vulvodynia, given incorrect medications which didn’t help my pain, I had SEVERE side effects to Gabapentin, Lyrica, OxyContin and Cymbalta.

The nerve blocks were done without imaging into the wall of my vagina. The pain specialist should have sent me to a pelvic radiologist who could do the proper block into the nerve roots in my right buttock.

I had pain on my rectum! The pain specialist said my pain started in my vagina and referred to my rectum. NOT. She misrepresented the truth.

I was told I’d be seen at a Pain Clinic. I wasn’t. I was seen on a Medicine Ward,

Why? I was never given Pain Clinic Intake Forms to fill out at my first consult with the pain specialist. Why not? My whole case has been one of medical malpractice. I was neglected for years.

The didn’t follow the standard of Care in my case because they were worried about a lawsuit. They saw the clip on an MRI. They should have removed it.

Instead, they let me develop a life threatening neuropathy which caused severe sleep deprivation. They said I had a nerve imbalance....a psychiatrist thought I had cyclothymia. Nonsense. I wasn’t ever depressed or manic.

I’ve got central sensitization now. I feel mildly electrocuted throughout my entire nervous system. I can’t handle anymore sedatives. I’m done with Valium, Clonodine, etc. I need my wits about me.

You might want to try fermented food for your abdominal cramps. My lower back is fine. I’m lucky. I was VERY fit before doctors left me to die.

[Renee2 in reply to Konagirl60]

I feel for you. I hope you can get help and support.

[Konagirl60 in reply to Renee2]

Thank you.

[Korrina]

I know and the thing is if I had it now me and my husband would have our own home. Instead we live with our in-laws.

Il look them up